Home-based palliative care services for underserved populations

Journal of Palliative Medicine
Ritabelle FernandesEmese Somogyi-Zalud

Abstract

Kokua Kalihi Valley is one of the first federally qualified community health centers offering home-based palliative care (HBPC). Kokua Kalihi Valley serves low-income, immigrant populations from Asia and the Pacific Islands, whose end-of-life needs are rarely addressed. Our team includes a palliative medicine physician, nurse, case manager, psychologist, interpreter, and volunteers. The purpose of this Institutional Review Board-approved study was to measure symptom relief and quality of life, resource utilization, and satisfaction with HBPC. Over 12 months, 91 people including 46 patients with chronic advanced illnesses and 45 corresponding primary caregivers were enrolled. Data were collected prospectively, upon admission, and repeatedly thereafter, using the Missoula-Vitas Quality of Life Index, the Edmonton Symptom Assessment Scale, and the Palliative Performance Scale. Utilization of resources was tracked, including case management, hospice, emergency department, and hospital visits. The median age was 71 years, and more than half had chronic neurodegenerative conditions. Most patients (98%) were minority, including Samoans, Filipinos, Japanese, Micronesians, and Hawaiians. Median stay in HBPC was 7 months, with a median o...Continue Reading

References

Apr 1, 1997·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·G C RinckC H Veenhof
Dec 22, 1999·JAMA : the Journal of the American Medical Association·R Schulz, S R Beach
Sep 6, 2001·Journal of the Royal Society of Medicine·J O'Neill, K Marconi
Oct 13, 2001·Journal of Palliative Medicine·J A Billings, S Pantilat
Sep 17, 2002·Journal of Pain and Symptom Management·Cecilia SepúlvedaAndreas Ullrich
Sep 17, 2002·Journal of Pain and Symptom Management·Robin L Fainsinger
Jan 8, 2004·JAMA : the Journal of the American Medical Association·Joan M TenoVincent Mor
May 16, 2007·The American Journal of Hospice & Palliative Care·Pam McGrathStasia Kail-Buckley
Jun 27, 2007·Journal of Palliative Medicine·Thomas E ElliottJeanette A Palcher
Jul 5, 2007·Journal of the American Geriatrics Society·Richard BrumleyJorge Gonzalez
Dec 1, 2007·Journal of the American Geriatrics Society·Quyen Ngo-MetzgerEllen P McCarthy
Jan 1, 2009·Journal of Palliative Medicine·Edmond A BendalyGregory P Gramelspacher

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Citations

Sep 8, 2011·Journal of Palliative Medicine·Christina L BellDaniel Fischberg
Mar 2, 2012·Journal of Oncology Practice·Arif H KamalAmy P Abernethy
Mar 11, 2016·Indian Journal of Palliative Care·Sunil DhiliwalMary Ann Muckaden
Nov 20, 2012·Journal of Pain and Symptom Management·Arif H KamalAmy P Abernethy
Dec 5, 2012·Journal of the American Geriatrics Society·Ania WajnbergTheresa Soriano
Mar 27, 2015·Health & Social Care in the Community·Sara M MorrisMatthew Hill
Jul 7, 2016·African Journal of Primary Health Care & Family Medicine·Ntsieni S MashauMakondelela J Mudau
Jul 14, 2017·Health & Social Care in the Community·C Susana CaxajRobert Janke
Sep 7, 2012·The American Journal of Hospice & Palliative Care·Cathy L CampbellErica Lewis
Apr 6, 2017·Archives of Disease in Childhood·Sarah MitchellJeremy Dale
Oct 26, 2012·Current Opinion in Supportive and Palliative Care·Claudia Bausewein, Irene J Higginson
Aug 16, 2018·Journal of Cross-cultural Gerontology·Emily H EckemoffDan Wang
May 28, 2020·Journal of Palliative Medicine·Ritabelle FernandesDongmei Li
Dec 30, 2014·Journal of Nursing Care Quality·Marianne BaernholdtErica Lewis
May 25, 2018·The American Journal of Hospice & Palliative Care·Elissa KozlovM Carrington Reid
Dec 11, 2020·BMJ Supportive & Palliative Care·Katrin GerberJosefine Antoniades
Mar 16, 2021·Journal of Primary Care & Community Health·Paige C BarkerMelanie G Hagen

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