Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil.

Health Policy and Planning
Clarissa SimasHeidi Larson

Abstract

This article investigates how hope and trust played out for two groups at the forefront of the Zika epidemic: caregivers of children with congenital Zika syndrome and healthcare workers. We conducted 76 in-depth interviews with members of both groups to examine hope and trust in clinical settings, as well as trust in public institutions, in the health system and in the government of Brazil. During and after the Zika epidemic, hope and trust were important to manage uncertainty and risk, given the lack of scientific evidence about the neurological consequences of Zika virus infection. The capacity of healthcare workers and caregivers to trust and to co-create hope seems to have allowed relationships to develop that cushioned social impacts, reinforced adherence to therapeutics and enabled information flow. Hope facilitated parents to trust healthcare workers and interventions. Hope and trust appeared to be central in the establishment of support networks for caregivers. At the same time, mistrust in the government and state institutions may have allowed rumours and alternative explanations about Zika to spread. It may also have strengthened activism in mother's associations, which seemed to have both positive and negative implic...Continue Reading

References

Mar 1, 1994·Social Science & Medicine·C Mattingly
Mar 1, 1994·Social Science & Medicine·M J Del Vecchio GoodB J Good
Nov 21, 1997·American Journal of Public Health·V N Gamble
Feb 3, 1998·Social Biology·J M Joesch, K R Smith
Nov 20, 2002·Archives of Internal Medicine·Giselle Corbie-SmithDiane Marie M St George
Mar 5, 2003·Social Science & Medicine·Lucy Gilson
Aug 25, 2010·Journal of Family Psychology : JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43)·Sigan L HartleyDaniel Bolt
Jul 27, 2011·Autism : the International Journal of Research and Practice·Rebecca GialloRachelle Porter
Mar 9, 2012·American Journal of Public Health·Debra DeBruinMary Faith Marshall
May 8, 2014·Journal of Oncology Practice·Rhonda S CooperThomas J Smith
May 29, 2015·Ciência & saúde coletiva·Vivian Renne Gerber LedermanDecio Brunoni
Mar 10, 2016·American Journal of Public Health·Demócrito de Barros Miranda-FilhoLaura Cunha Rodrigues
Apr 26, 2016·The American Journal of Bioethics : AJOB·Lisa H HarrisMary Faith Marshall
Apr 27, 2016·Lancet·Jonathan Watts
May 19, 2016·Cadernos de saúde pública·Debora Diniz
Dec 5, 2016·Social Science & Medicine·Robert A BlairLily L Tsai
Jan 19, 2017·International Journal of Gynaecology and Obstetrics : the Official Organ of the International Federation of Gynaecology and Obstetrics·Debora DinizBernard M Dickens
Apr 22, 2017·Archives of Women's Mental Health·Sheila Jaqueline Gomes Dos Santos OliveiraPaulo Ricardo Saquete Martins-Filho
Sep 28, 2017·Emerging Infectious Diseases·Sonia R Lambert PassosYara H M Hökerberg
Dec 16, 2017·The Lancet Infectious Diseases·Thalia Velho Barreto de AraújoUNKNOWN State Health Department of Pernambuco
Apr 5, 2018·Human Vaccines & Immunotherapeutics·Heidi J LarsonPauline Paterson
Jul 13, 2018·BMJ Global Health·Adriano MassudaRifat Atun
Aug 23, 2018·Cadernos de saúde pública·Martha Cristina Nunes MoreiraUNKNOWN SEIZ Research Group
Aug 28, 2018·Lancet·Manon VougaDavid Baud

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