How and why patients made Long Covid

Social Science & Medicine
Felicity Callard, Elisa Perego

Abstract

Patients collectively made Long Covid - and cognate term 'Long-haul Covid' - in the first months of the pandemic. Patients, many with initially 'mild' illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on Twitter: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid - by two patients with this illness - focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.

References

Jul 5, 2018·Journal of Bioethical Inquiry·Charlotte Blease, Keith J Geraghty
Apr 1, 2020·The Lancet Infectious Diseases·Francois-Xavier LescureYazdan Yazdanpanah
Apr 25, 2020·JAMA : the Journal of the American Medical Association·John J Marini, Luciano Gattinoni
May 16, 2020·Medical Anthropology·Lenore Manderson, Ayo Wahlberg
Jul 9, 2020·Brain : a Journal of Neurology·Ross W PatersonMichael S Zandi
Jul 10, 2020·JAMA : the Journal of the American Medical Association·Angelo CarfìUNKNOWN Gemelli Against COVID-19 Post-Acute Care Study Group
Jul 19, 2020·Science Immunology·Daniel M Altmann, Rosemary J Boyton
Aug 14, 2020·BMJ : British Medical Journal·Trisha GreenhalghLaiba Husain

❮ Previous
Next ❯

Citations

Feb 5, 2021·ACS Chemical Neuroscience·Shin Jie Yong
Dec 29, 2020·BMJ : British Medical Journal·Manoj Sivan, Sharon Taylor
Jan 22, 2021·PM & R : the Journal of Injury, Function, and Rehabilitation·Monica Verduzco-GutierrezDebjani Mukherjee
Apr 1, 2021·Med·Nisreen A Alwan, Luke Johnson
Apr 4, 2021·International Journal of Environmental Research and Public Health·César Fernández-de-Las-PeñasLidiane L Florencio
May 2, 2021·The Journal of Orthopaedic and Sports Physical Therapy·Simon DécaryFrédérique Daigle
Jun 2, 2021·Journal of Paediatrics and Child Health·Danilo BuonsensoJacopo Vergari
Jun 30, 2021·History and Philosophy of the Life Sciences·Sarah AtkinsonYlva Söderfeldt
Jun 30, 2021·Diabetes & Metabolic Syndrome·César Fernández-de-Las-PeñasArkiath Veettil Raveendran
Jun 25, 2021·International Journal of General Medicine·Mandeep GargManavjit Singh Sandhu
Jul 29, 2021·EClinicalMedicine·Adam HampshireMitul A Mehta
Jul 11, 2021·The European Respiratory Journal·Robert Naeije, Sergio Caravita
Jul 16, 2021·Journal of the Royal Society of Medicine·Olalekan Lee AiyegbusiUNKNOWN TLC Study Group
Jul 21, 2021·Patient Education and Counseling·Charee M ThompsonSara Babu
Jul 29, 2021·Infection·Hossein AkbarialiabadBahar Bastani
Apr 30, 2021·Clinical Infectious Diseases : an Official Publication of the Infectious Diseases Society of America·Viet-Thi TranPhilippe Ravaud
Aug 10, 2021·Soins; la revue de référence infirmière·Catherine Tourette-TurgisMylène Rahel Damamme
Aug 24, 2021·Social Science & Medicine·Alex RushforthTrisha Greenhalgh
Jul 6, 2021·Annals of Internal Medicine·Mayssam NehmeUNKNOWN CoviCare Study Team
Sep 29, 2021·BMJ Global Health·Melina MichelenCharitini Stavropoulou
Oct 6, 2021·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Martine NurekUNKNOWN Delphi panellists
Nov 5, 2021·BMJ Open Respiratory Research·Sara ButteryNicholas S Hopkinson
Nov 27, 2021·Journal of Evaluation in Clinical Practice·Joachim SturmbergAndreas Kalk

❮ Previous
Next ❯

Software Mentioned

LongCovid

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Physician Assistant Clinics
James A Van Rhee
Chemistry & Industry
Journal of Medical Virology
Stephen HalpinManoj Sivan
BMJ : British Medical Journal
BMJ : British Medical Journal
Samuel Finnikin, David J Spiegelhalter
© 2021 Meta ULC. All rights reserved