How Could Commercial Terms of Use and Privacy Policies Undermine Informed Consent in the Age of Mobile Health?

AMA Journal of Ethics
Cynthia E SchairerCinnamon S Bloss

Abstract

Granular personal data generated by mobile health (mHealth) technologies coupled with the complexity of mHealth systems creates risks to privacy that are difficult to foresee, understand, and communicate, especially for purposes of informed consent. Moreover, commercial terms of use, to which users are almost always required to agree, depart significantly from standards of informed consent. As data use scandals increasingly surface in the news, the field of mHealth must advocate for user-centered privacy and informed consent practices that motivate patients' and research participants' trust. We review the challenges and relevance of informed consent and discuss opportunities for creating new standards for user-centered informed consent processes in the age of mHealth.

Citations

Apr 3, 2019·Journal of the American Medical Informatics Association : JAMIA·Cynthia E SchairerCinnamon S Bloss
Apr 29, 2020·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·John T Wilbanks
Jul 2, 2020·Journal of Telemedicine and Telecare·Nam NguyenDan Poenaru
Aug 22, 2020·Yearbook of Medical Informatics·Hannah K Galvin, Paul R DeMuro
Apr 27, 2021·Annals of Internal Medicine·Brooke RockwernUNKNOWN Medical Informatics Committee and Ethics, Professionalism and Human Rights Committee of the American College of Physicians
Aug 17, 2021·Anesthesiology Clinics·Kathryn Harter Bridges, Julie Ryan McSwain

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