How much does intellectual disability really cost? First estimates for Australia

Journal of Intellectual & Developmental Disability
Christopher M DoranEric Emerson

Abstract

Given the paucity of relevant data, this study estimates the cost of intellectual disability (ID) to families and the government in Australia. Family costs were collected via the Client Service Receipt Inventory, recording information relating to service use and personal expense as a consequence of ID. Government expenditure on the provision of support and services was estimated using top-down costing. A total of 109 parents participated. The cost of ID in Australia is high, especially for families. Total economic costs of ID are close to $14,720 billion annually. Opportunity cost of lost time provided 85% of family expense. A comparison of family expense and social welfare benefits received suggests that families suffer considerable loss. This may impact on families' physical and emotional wellbeing. Monitoring of changes in expenditure is required. Policies should ensure that money devoted to ID is allocated in a rational, equitable, and cost-effective manner.

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Citations

Nov 26, 2014·Journal of Evaluation in Clinical Practice·Luis Salvador-CarullaJoachim Sturmberg
Sep 16, 2015·Journal of Intellectual Disability Research : JIDR·K ChevreulUNKNOWN BURQOL-RD Research Network
May 21, 2015·Disability and Health Journal·Dallas GenereauxPatricia H Birch
Apr 14, 2016·The European Journal of Health Economics : HEPAC : Health Economics in Prevention and Care·Karine ChevreulUNKNOWN BURQOL-RD Research Network
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May 14, 2016·Journal of Intellectual Disability Research : JIDR·K ChevreulUNKNOWN Members of the BURQOL-RD Research Network listed in the Online Appendix
Jul 15, 2016·Preventive Medicine Reports·Yetunde Marion DairoG Reza Oskrochi
Mar 30, 2018·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Lisa J EwansTony Roscioli
Dec 8, 2017·European Journal of Epidemiology·Hein HeuvelmanDheeraj Rai
Nov 2, 2018·Journal of Intellectual Disability Research : JIDR·Y LunskyW Wodchis
Sep 25, 2017·Applied Neuropsychology. Child·Noah K KaufmanLuis Ramos-Duran
Sep 17, 2019·The British Journal of Psychiatry : the Journal of Mental Science·Deborah SchofieldRupendra N Shrestha
Apr 25, 2020·Journal of Intellectual Disability Research : JIDR·S AroraS Einfeld
Dec 5, 2017·Journal of Neurogenetics·Soohyun LeePaul A Dawson
Jun 14, 2019·Journal of Applied Research in Intellectual Disabilities : JARID·Patricia NavasSusan M Havercamp
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Jan 26, 2020·Journal of Medical Genetics·Brett DobleTony Roscioli
Feb 7, 2021·BMC Health Services Research·Matthew J GlasgowJane E Harding
Nov 2, 2020·Developmental Medicine and Child Neurology·Shih-Yu HuangChien-Chang Liao
Apr 15, 2021·Orphanet Journal of Rare Diseases·Lidia García-PérezPedro Serrano-Aguilar
Jul 23, 2021·Journal of Autism and Developmental Disorders·Emma K BakerDavid E Godler

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