"How to conquer a mountain with multiple sclerosis". How a climbing expedition to Machu Picchu affects the way people with multiple sclerosis experience their body and identity: a phenomenological analysis

Disability and Rehabilitation
Joeri CalsiusMarie Beatrice D'hooghe

Abstract

People with multiple sclerosis (MS) frequently complain of chronic or fluctuating fatigue, sometimes accompanied by pain. From a phenomenological point of view, both fatigue and pain are seen as aspects of suffering which adversely affect the physical, psychological, social and even existential dimensions of the individual life. The present study discusses changes in identity and body awareness in people with MS who completed a 5-d trekking to Machu Picchu in Peru in 2012, after having completed a physical training schedule for several months. All nine participants took part in a focus group organized after the trip. The Interpretative Phenomenological Analysis (IPA) was used to gain insight in their experiences and to refine pre-existing theoretical understanding of body awareness and identity. Our phenomenological analysis clarified how aspects of the participants' identity and body experience before, during and after the journey influenced major daily themes as "body", "lived body", "behaviour" and "relationship" and how this contributed to a meaningful experience. When participants describe how they started looking at their own identity more consciously after being watched through the others' eyes, this resulted in a joyful...Continue Reading

References

Jun 1, 1993·ANS. Advances in Nursing Science·M J Price
Mar 21, 2002·Journal of Clinical Nursing·Siv SöderbergAstrid Norberg
Jul 14, 2005·Disability and Rehabilitation·Gunvor Gard
Jul 27, 2005·Multiple Sclerosis : Clinical and Laboratory Research·Robert W MotlErin M Snook
Sep 18, 2007·Expert Review of Neurotherapeutics·Claudio SolaroMichele Messmer Uccelli
Sep 21, 2007·Multiple Sclerosis : Clinical and Laboratory Research·R W Motl, J L Gosney
Sep 21, 2007·Multiple Sclerosis : Clinical and Laboratory Research·U DalgasT Ingemann-Hansen
Oct 9, 2008·Disability and Rehabilitation·Cath SmithAnthony G Schneiders
Oct 25, 2008·Neurorehabilitation and Neural Repair·Erin M Snook, Robert W Motl
Feb 3, 2009·Health Care Analysis : HCA : Journal of Health Philosophy and Policy·Jennifer Bullington
Mar 19, 2009·World Psychiatry : Official Journal of the World Psychiatric Association (WPA)·Giovanni Stanghellini
May 15, 2009·PloS One·Wolf E MehlingAnita Stewart
Jul 22, 2009·Health and Quality of Life Outcomes·Nicole M Stroud, Clare L Minahan
Sep 5, 2009·Current Opinion in Psychiatry·Thomas Fuchs, Jann E Schlimme
Mar 3, 2010·Multiple Sclerosis : Clinical and Laboratory Research·U DalgasT Ingemann-Hansen
Jul 24, 2010·Physiotherapy Theory and Practice·Amanda Lundvik GyllenstenGunvor Gard
Aug 27, 2010·Consciousness and Cognition·Doreen JirakFerdinand Binkofski
Dec 15, 2010·Multiple Sclerosis : Clinical and Laboratory Research·Tom BroekmansBert O Eijnde
Apr 9, 2011·Philosophy, Ethics, and Humanities in Medicine : PEHM·Wolf E MehlingAnita L Stewart
Apr 21, 2011·Disability and Rehabilitation·Catherine SmithAnthony G Schneiders
May 4, 2011·Annals of the New York Academy of Sciences·A D Bud Craig
Jul 8, 2011·Multiple Sclerosis : Clinical and Laboratory Research·A TallnerM Mäurer
Jan 3, 2012·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Jackie Williams ReadeCandyce S Russell
Mar 6, 2012·Topics in Cognitive Science·Beate M Herbert, Olga Pollatos

❮ Previous
Next ❯

Citations

Jul 29, 2016·Multiple Sclerosis : Clinical and Laboratory Research·Peter FeysStine Lykke Andersen
Sep 11, 2018·Qualitative Health Research·Hanneke van der MeideLeo H Visser
Mar 17, 2019·International Journal of Environmental Research and Public Health·Barbara EigenschenkEduard Inglés
Apr 26, 2015·Clinical Orthopaedics and Related Research·B Michael Wroblewski, Anthony Calabro
Dec 16, 2016·Disability and Rehabilitation·Sandra VanderKaayChun Y Lim
Aug 8, 2021·International Journal of Environmental Research and Public Health·Martin MauKirsten Kaya Roessler

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Journal of Vascular Nursing : Official Publication of the Society for Peripheral Vascular Nursing
Hadi HasankhaniMaryam Allahbakhshian
International Journal of Nursing Studies
Gullvi FlensnerOlle Söderhamn
Multiple Sclerosis International
Marie Beatrice D'hooghePaul Van Asch
© 2021 Meta ULC. All rights reserved