Huntington disease care: From the past to the present, to the future

Parkinsonism & Related Disorders
T A Mestre, K Shannon

Abstract

Huntington disease is a progressive neurodegenerative disorder without a cure. Its clinical presentation makes complex the care of patients with HD, further impacted by the progressive loss of dependence and disability. Intuitively, HD management calls for multispecialty care. Literature review and expert-based statement. Chorea is the only indication for symptomatic treatments in HD. Surgical therapies are experimental, and exercise-based physical interventions have been assessed but in small feasibility studies. In HD, multispecialty care requires the active involvement of physicians, therapists, social workers and nutritionists. In about half of the HD clinics, a multidisciplinary case review is offered. It is still unknown what is the care delivery model that is best for HD. Palliative care is an important concept in HD care focusing in quality of life, considering physical, psychosocial, and spiritual problems. Palliative care may delay nursing home placement in advanced HD. There is a support for multispecialty care in HD, but more evidence needs to be generated through clinical research. The implementation of technology in the multispecialty care of patients with HD has a significant potential for reducing the care burde...Continue Reading

Citations

Jun 21, 2019·Nursing·Nancy L Urrutia
Nov 28, 2019·Stem Cells International·Rohaina Che ManMuhammad Dain Yazid
Apr 27, 2021·Journal of Huntington's Disease·Anna C PfalzerDaniel O Claassen

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