I-CoPE: A pilot study of structured supportive care delivery to people with newly diagnosed high-grade glioma and their carers

Neuro-oncology Practice
Jennifer PhilipMichael Murphy

Abstract

There is limited evidence to guide best approaches to supportive care delivery to patients with high-grade glioma. I-CoPE (Information, Coordination, Preparation and Emotional) is a structured supportive care approach for people with newly diagnosed high-grade glioma and their family carers. Delivered by a cancer care coordinator, I-CoPE consists of (1) staged information, (2) regular screening for needs, (3) communication and coordination, and (4) family carer engagement. This pilot study tested acceptability and preliminary effectiveness of I-CoPE, delivered over 3 transitions in the illness course, for people newly diagnosed with high-grade glioma and their carers. I-CoPE was delivered at the identified transition times (at diagnosis, following the diagnostic hospitalization, following radiotherapy), with associated data collection (enrollment, 2 weeks, 12 weeks). Outcomes of interest included: acceptability/feasibility (primary); quality of life; needs for support; disease-related information needs; and carer preparedness to care (secondary). Descriptive statistics were used to assess acceptability outcomes, while patient and carer outcomes were assessed using repeated measures ANOVA. Thirty-two patients (53% male, mean age...Continue Reading

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Citations

Oct 2, 2019·Asia-Pacific Journal of Oncology Nursing·Stacey PanozzoJennifer A Philip
Oct 18, 2020·Brain Sciences·Rita C CroomsBarbara G Vickrey
Mar 19, 2021·Neuropsychiatric Disease and Treatment·Yu-Hong Zhao, Yan Xu
Oct 12, 2021·Health & Social Care in the Community·Milena HeinschFrances Kay-Lambkin
Nov 27, 2021·Journal of Neuro-oncology·Maria LoizidouGeorge Samandouras

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