"I Don't Think Of It As An Illness": Illness Representations in Mild to Moderate Dementia

Journal of Alzheimer's Disease : JAD
Linda ClareRobert T Woods

Abstract

The self-regulatory model proposes that illness representations influence adjustment and coping in chronic conditions. Better understanding of the illness representations held by people with dementia could help with targeting information and support so as to optimize adjustment and coping. In this mixed-methods study of illness representations among people with mild to moderate Alzheimer's, vascular, or mixed dementia we aimed to clarify the nature of the representations held, to determine whether specific profiles can be identified based on perceptions of the identity and cause of the condition, and to examine associations between these profiles and other participant characteristics. Data were collected in the second wave of the Memory Impairment and Dementia Awareness Study (MIDAS). Sixty-four people with dementia, who had been told their diagnosis at a memory clinic, completed interviews and responded to questionnaires. In each case a carer was also interviewed. Cluster analysis based on responses about identity and cause identified three profiles. 'Illness' cluster participants saw themselves as living with an illness and used diagnostic labels, 'ageing' cluster participants did not use diagnostic labels and viewed their di...Continue Reading

References

Nov 1, 1975·Journal of Psychiatric Research·M F FolsteinP R McHugh
May 1, 1982·Journal of Gerontology·R I PfefferS Filos
Nov 1, 1994·The British Journal of Psychiatry : the Journal of Mental Science·O A Abiodun
Jan 1, 1993·Annual Review of Psychology·R S Lazarus
Sep 20, 2000·Alzheimer Disease and Associated Disorders·J S Roberts, C M Connell
Nov 2, 2002·The British Journal of Psychiatry : the Journal of Mental Science·Lawrence J Whalley
Jun 5, 2003·Journal of Behavioral Medicine·Marie-France CoutuLysanne Rochon-Goyer
Jun 5, 2003·Journal of Psychosomatic Research·Nicola M Jopson, Rona Moss-Morris
Jul 25, 2003·Social Science & Medicine·Linda Clare
Feb 6, 2004·International Journal of Geriatric Psychiatry·Claire BamfordJohn Bond
May 6, 2004·British Journal of Health Psychology·Valerie L LawsonJohn N Harvey
Aug 5, 2005·Journal of the American Geriatrics Society·Ladson HintonSue E Levkoff
Feb 2, 2006·Qualitative Health Research·Tracy FarmerJohn Eyles
Mar 4, 2006·Qualitative Health Research·Guy Harman, Linda Clare
Jun 27, 2006·Journal of Advanced Nursing·Els SteemanMieke Grypdonck
Aug 15, 2006·International Journal of Geriatric Psychiatry·Linda ClareBob Woods
Oct 20, 2006·The Gerontologist·Carol J WhitlatchElia Femia
Mar 24, 2007·Research in Nursing & Health·Kathleen Peterson-SweeneyElizabeth Anson
Oct 31, 2007·Psychological Bulletin·Cynthia A Berg, Renn Upchurch
Apr 22, 2011·Dementia and Geriatric Cognitive Disorders·Linda ClareRobin G Morris
Sep 13, 2011·Alzheimer Disease and Associated Disorders·Linda ClareRobin G Morris
Mar 21, 2013·The Gerontologist·Claire MatchwickJane Simpson

❮ Previous
Next ❯

Citations

Nov 12, 2016·Epilepsy Research·Haixia JiKai Wang
Nov 9, 2018·Aging & Mental Health·Paula Gasparini Emery TrindadeMarcia Cristina Nascimento Dourado
Mar 19, 2019·Health Technology Assessment : HTA·Linda ClareBob Woods
Apr 24, 2019·Psychology & Health·Catherine QuinnLinda Clare
Nov 8, 2016·Alzheimer Disease and Associated Disorders·Sandra VerhülsdonkElke Kalbe
May 14, 2020·Journal of Geriatric Psychiatry and Neurology·Catherine M AlexanderLinda Clare
May 21, 2017·Journal of Alzheimer's Disease : JAD·Pilar CañabateMercè Boada
Dec 6, 2017·Aging & Mental Health·Clarissa M GiebelNitin Purandare
Aug 12, 2020·International Journal of Qualitative Studies on Health and Well-being·Kirsten ThorsenAud Johannessen
Feb 19, 2021·International Journal of Geriatric Psychiatry·Gill WindleVanessa Burholt
Mar 16, 2021·Geriatric Nursing·Pen-Chen KungYea-Ing L Shyu

❮ Previous
Next ❯

Related Concepts

Related Feeds

Cell Aging (Keystone)

This feed focuses on cellular aging with emphasis on the mitochondria, autophagy, and metabolic processes associated with aging and longevity. Here is the latest research on cell aging.

Aging Epidemiology

This feed focuses on epidemiology of aging and aging-related conditions, including Alzheimer’s disease, dementia, and age-associated cognitive impairment. Here is the latest research.

Age-related Dementia

Dementias are a group of conditions, including Alzheimer's disease, vascular dementia, and frontotemporal dementia, characterized by deficiencies in cognitive abilities. Age-related dementia refers to dementias that occur in older individuals, usually 60+ years old, in contrast to early-onset dementia. Follow the latest research on age-related dementia here.