'I have cystic fibrosis': an analysis of web-based disclosures of a chronic illness

Journal of Clinical Nursing
Russell D Ravert, Toni L Crowell

Abstract

This study examined instances where individuals with cystic fibrosis disclosed their illness on the World Wide Web, better understand their experiences and needs across stages of the lifespan. Disclosing one's chronic illness is typically done purposefully, so examining those disclosures allows a naturalistic window into individuals' experiences and needs. This study is unique to Internet-based studies of chronic illness in that data are not limited to interactions at health-related websites, but include disclosure instances gathered across a variety of Internet contexts. Qualitative content analysis with a summative component was used. A web-based search engine was used to identify all web pages containing the phrases 'I have cystic fibrosis' and 'I have cf' (n = 277). Constant comparative analysis methods were used to identify thematic categories of context. Quantitative methods were used to examine age-related differences in the distribution of those disclosure statements. Findings were interpreted within a framework of Erikson's lifespan psychosocial theory. Adolescents (13-18 years) most frequently expressed psychosocial concerns and enlisted social support. Emerging adults (19-25 years) tended to present cystic fibrosis a...Continue Reading

References

Feb 1, 1976·The Journal of Pediatrics·I R BoyleL L Kulczycki
Nov 1, 1990·Health & Social Work·K O Ell, K K Reardon
Mar 1, 1989·Journal of Adolescent Health Care : Official Publication of the Society for Adolescent Medicine·J A Mador, D H Smith
Mar 1, 1985·Journal of Adolescent Health Care : Official Publication of the Society for Adolescent Medicine·E R McAnarney
Jun 1, 1987·Journal of Pediatric Psychology·M P Gavaghan, J E Roach
Feb 1, 1993·Qualitative Health Research·D L Morgan
Feb 1, 1997·Health & Social Work·N L Sidell
Feb 1, 1997·Journal of Pediatric Nursing·B J Christian, J P D'Auria
Aug 1, 1997·Journal of General Internal Medicine·J D CulverH Frumkin
Apr 11, 2001·Chest·D L AndersonK K Hardy
May 8, 2001·Qualitative Health Research·J Sixsmith, C D Murray
Sep 14, 2001·Qualitative Health Research·K M Robinson
Nov 10, 2001·BMJ : British Medical Journal·G Eysenbach, J E Till
Jan 1, 2003·Social Work in Health Care·MaryKay Lannon Palmer, Laura S Boisen
Jun 6, 2003·Health Communication·Amanda L Kundrat, Jon F Nussbaum
Feb 11, 2004·Qualitative Health Research·Karen Lowton
Jul 3, 2004·Pediatrics·Mark A AnselmoKenan E Haver
Oct 30, 2004·The Diabetes Educator·Russell D RavertGary M Ingersoll
Aug 4, 2005·Journal of Interprofessional Care·Karen LowtonSimon Carmel
Oct 6, 2005·Qualitative Health Research·Hsiu-Fang Hsieh, Sarah E Shannon

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.