"I just want my life back!" - Men's narratives about living with fibromyalgia

Disability and Rehabilitation
Merja Sallinen, Anne Marit Mengshoel

Abstract

Fibromyalgia is characterized by chronic widespread pain and an array of other symptoms. It is less common among men than among women and the results concerning the severity of men's symptoms are contradictory. The purpose of this study was to elucidate the impacts of fibromyalgia on men's daily life and work ability. The data were collected through life story interviews of five men with fibromyalgia. The results of a narrative analysis are presented in a form of two model narratives: "Adjusting the life to match the illness" and "Being imprisoned by the pain". The first narrative is a description of finding a balance between the illness and wellness, whereas the second is an account of debilitating symptoms, unsuccessful treatment, and rehabilitation interventions. The results suggest that adjusting one's activities may help to manage the symptoms and to support work ability in many cases but for some patients the experience of feeling healthy or pain free might be nothing but a fading memory. Narrative approach is well applicable to rehabilitation of patients with fibromyalgia: an illness narrative may help the patient and professionals to understand the situation better and to set realistic and relevant goals for rehabilitat...Continue Reading

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Citations

Oct 15, 2019·International Journal of Qualitative Studies on Health and Well-being·Merja SallinenKari Nyheim Solbrække
Aug 23, 2020·Pain Medicine : the Official Journal of the American Academy of Pain Medicine·Yuen Foong Henry Lew, Xiao Hui Xin
Oct 3, 2018·Health Psychology Open·Penny J FurnessKim Lawson
Oct 13, 2020·Disability and Rehabilitation·Maayan Lev, Limor Goldner

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