"I see myself as part of the team" - family caregivers' contribution to safety in advanced home care

BMC Nursing
Christiane Schaepe, Michael Ewers

Abstract

The use of medical technology and the various contributing and interdepending human factors in home care have implications for patient safety. Although family caregivers are often involved in the provision of advanced home care, there is little research on their contribution to safety. The study aims to explore family caregivers in Home Mechanical Ventilation (HMV) safety experiences and how safety is perceived by them in this context. Furthermore, it seeks to understand how family caregivers contribute to the patients' and their own safety in HMV and what kind of support they expect from their health care team. An explorative, qualitative study was applied using elements from grounded theory methodology. Data were collected through individual interviews with 15 family caregivers to patients receiving HMV in two regions in Germany. The audiotaped interviews were then subject to thematic analysis. The findings shows that family caregivers contribute to safety in HMV by trying to foster mutual information sharing about the patient and his/her situation, coordinating informally health care services and undertaking compensation of shortcomings in HMV. Consequently, family caregivers take on considerable responsibility for patient s...Continue Reading

References

Jan 7, 2000·Journal of Clinical Nursing·J NoyesD Southall
Jan 22, 2000·BMJ : British Medical Journal·C PopeN Mays
Jun 12, 2001·American Journal of Physical Medicine & Rehabilitation·R G van KesterenL W van Leyden
Dec 17, 2003·Journal of Advanced Nursing·Kai-Wei Katherine Wang, Alan Barnard
Jun 3, 2005·The European Respiratory Journal·S J Lloyd-OwenJ A Wedzicha
Jul 29, 2005·Health & Social Care in the Community·Janet HeatonRobina Shah
Jan 27, 2006·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Thomas V Perneger
Feb 24, 2006·Scandinavian Journal of Caring Sciences·Thorbjorg Sóley Ingadóttir, Helga Jonsdottir
Nov 23, 2006·Nutrition in Clinical Practice : Official Publication of the American Society for Parenteral and Enteral Nutrition·Marion F WinklerCarol E Smith
Mar 14, 2007·Home Healthcare Nurse·Elizabeth A Madigan
Apr 23, 2008·Journal of Health Services Research & Policy·Lynn StevensonWaqar Mughal
May 7, 2009·Journal of Nursing Management·Diane M DoranMicaela Jantzi
Aug 12, 2009·Healthcare Quarterly·Ariella LangCherie Geering Curry
Sep 15, 2009·Journal of Clinical Nursing·Angelika FexOlle Söderhamn
Feb 12, 2010·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Paul MasottiMichael Green
May 3, 2011·Journal of Family Nursing·Berit Lindahl, Britt-Marie Lindblad
May 25, 2011·BMC Health Services Research·Knut DybwikBerit S Brinchmann
Nov 5, 2011·Nursing Inquiry·Angelika FexOlle Söderhamn
Dec 1, 2009·Journal of Patient Safety·Kerm HenriksenTeresa Zayas-Cabán
May 16, 2012·Journal of Clinical Nursing·Berit MunckJan Mårtensson
Jan 4, 2013·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Nancy SearsSam Shortt
Jul 6, 2013·BMJ Quality & Safety·Régis BlaisStéphane Thalès
Aug 3, 2013·Health & Social Care in the Community·Marilyn Macdonald, Ariella Lang
Nov 19, 2013·Journal of Palliative Medicine·Susan K BaxterChristopher J McDermott
Jan 15, 2015·Respiratory Care·Louise RoseUNKNOWN CANuVENT Group
Mar 21, 2015·Respiration; International Review of Thoracic Diseases·Sophie Emilia HuttmannJan Hendrik Storre
Feb 3, 2016·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Catherine E TongAnne Martin-Matthews
Jul 23, 2016·Canadian Respiratory Journal : Journal of the Canadian Thoracic Society·Erika J MacIntyreSean M Bagshaw
Jan 14, 2017·The American Journal of Nursing·Sonya L Kowalski, Maureen Anthony
Feb 6, 2017·Scandinavian Journal of Caring Sciences·Christiane Schaepe, Michael Ewers

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Citations

Jul 11, 2020·Das Gesundheitswesen·Hanna KlingshirnBernd Reuschenbach
Apr 20, 2021·American Journal of Critical Care : an Official Publication, American Association of Critical-Care Nurses·Kristen Jones-BonofiglioDaniel Garros

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