Identifying Factors that Facilitate Treatment Adherence in Cystic Fibrosis: Qualitative Analyses of Interviews with Parents and Adolescents

Journal of Clinical Psychology in Medical Settings
Christina J NicolaisAlexandra L Quittner

Abstract

Cystic fibrosis (CF) is a progressive, genetic disease affecting multiple organ systems. Treatments are complex and take 2-4 h per day. Adherence is 50% or less for pulmonary medications, airway clearance, and enzymes. Prior research has identified demographic and psychological variables associated with better adherence; however, no study has extensively identified facilitators of treatment adherence (e.g., adaptive behaviors and cognitions) in a sample of parents and adolescents. Forty-three participants were recruited from four CF centers as part of a larger measurement study. Participants included 29 parents (72% mothers; 72% Caucasian) and 14 adolescents (ages 11-20, 64% female, 71% Caucasian). Participants completed semi-structured interviews to elicit barriers to adherence. However, facilitators of adherence naturally emerged, therefore indicating need for further exploration. Interviews were audiotaped, transcribed and content-analyzed in NVivo to identify those behaviors and beliefs that facilitated adherence, using a phenomenological analysis. Frequencies of these themes were tabulated. Nine themes emerged, with individual codes subsumed under each. Themes included social support, community support, organizational stra...Continue Reading

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Citations

Sep 18, 2020·Current Opinion in Pulmonary Medicine·Trudy Havermans, Alistair J A Duff
May 1, 2021·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Guy Van SchandevylLaurence Hanssens
Nov 6, 2021·Pediatric Pulmonology·Megan E GabelSuzanne H Michel

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