Identifying Outcomes that Are Important to Living Kidney Donors: A Nominal Group Technique Study

Clinical Journal of the American Society of Nephrology : CJASN
Camilla S HansonAllison Tong

Abstract

Living kidney donor candidates accept a range of risks and benefits when they decide to proceed with nephrectomy. Informed consent around this decision assumes they receive reliable data about outcomes they regard as critical to their decision making. We identified the outcomes most important to living kidney donors and described the reasons for their choices. Previous donors were purposively sampled from three transplant units in Australia (Sydney and Melbourne) and Canada (Vancouver). In focus groups using the nominal group technique, participants identified outcomes of donation, ranked them in order of importance, and discussed the reasons for their preferences. An importance score was calculated for each outcome. Qualitative data were analyzed thematically. Across 14 groups, 123 donors aged 27-78 years identified 35 outcomes. Across all participants, the ten highest ranked outcomes were kidney function (importance=0.40, scale 0-1), time to recovery (0.27), surgical complications (0.24), effect on family (0.22), donor-recipient relationship (0.21), life satisfaction (0.18), lifestyle restrictions (0.18), kidney failure (0.14), mortality (0.13), and acute pain/discomfort (0.12). Kidney function and kidney failure were more im...Continue Reading

References

Aug 10, 1995·The New England Journal of Medicine·P I TerasakiS Takemoto
Nov 13, 2003·Transplantation Proceedings·V C McAlister, K Badovinac
Mar 19, 2004·British Journal of Community Nursing·Jane AllenMargaret Jones
Mar 24, 2006·Nephrology, Dialysis, Transplantation : Official Publication of the European Dialysis and Transplant Association - European Renal Association·Katherine S ClarkeUNKNOWN Donor Nephrectomy Outcomes Research (DONOR) Network
Aug 2, 2006·Annals of Internal Medicine·Neil BoudvilleUNKNOWN Donor Nephrectomy Outcomes Research (DONOR) Network
Sep 28, 2006·Kidney International·A X GargUNKNOWN Donor Nephrectomy Outcomes Research (DONOR) Network
Feb 13, 2007·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·K K ClemensUNKNOWN Donor Nephrectomy Outcomes Research (DONOR) Network
Aug 2, 2008·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·A YoungM Karpinski
Jan 31, 2009·The New England Journal of Medicine·Hassan N IbrahimArthur J Matas
Mar 10, 2010·Journal of Medical Ethics·Najma H MapleNizam Mamode
Mar 11, 2010·JAMA : the Journal of the American Medical Association·Dorry L SegevRobert A Montgomery
Apr 13, 2011·Nephrology, Dialysis, Transplantation : Official Publication of the European Dialysis and Transplant Association - European Renal Association·Rachael L MortonKirsten Howard
Feb 7, 2012·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Allison TongJonathan C Craig
Feb 7, 2012·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Miklos Z MolnarKamyar Kalantar-Zadeh
Mar 3, 2012·BMJ : British Medical Journal·Amit X GargUNKNOWN Donor Nephrectomy Outcomes Research Network
May 15, 2012·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Martin HowellKirsten Howard
Nov 29, 2013·Kidney International·Geir MjøenHallvard Holdaas
Feb 13, 2014·JAMA : the Journal of the American Medical Association·Abimereki D MuzaaleDorry L Segev
Mar 5, 2014·Current Transplantation Reports·Mary Amanda DewAndrea F DiMartini
Mar 13, 2014·Transplant International : Official Journal of the European Society for Organ Transplantation·James R RodrigueDidier A Mandelbrot
Apr 15, 2014·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·M B AllenP P Reese
Jun 4, 2014·Clinical Transplantation·Lee HildebrandRebecca C Anderson
Jul 22, 2014·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·P P ReeseJ H Silber
Sep 5, 2014·Current Opinion in Organ Transplantation·Christopher Wigfield
Sep 27, 2014·Journal of the American Society of Nephrology : JASN·Robert S GastonArthur J Matas
Nov 15, 2014·The New England Journal of Medicine·Amit X GargUNKNOWN DONOR Network
Jan 15, 2015·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·L TimmermanE K Massey
Apr 15, 2015·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·C ThiessenS Kulkarni
Jun 20, 2015·Lancet·Peter P ReeseAmit X Garg
Jul 1, 2015·Journal of Clinical Psychology in Medical Settings·James R RodrigueDidier A Mandelbrot
Dec 25, 2015·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·K L LentineD L Segev
Feb 9, 2016·Transplantation·S Adibul Hasan RizviS A Anwar Naqvi
Sep 16, 2016·BMJ : British Medical Journal·Pippa BaileyAisling E Courtney
Jul 26, 2017·Transplantation·Krista L LentineAmit X Garg

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Citations

Jun 2, 2018·Clinical Journal of the American Society of Nephrology : CJASN·Maria E Díaz-González de FerrisMichael Ted Ferris
Jun 2, 2018·Clinical Journal of the American Society of Nephrology : CJASN·Milda R Saunders, Michelle A Josephson
Mar 13, 2019·Clinical Journal of the American Society of Nephrology : CJASN·Krista L LentineDorry L Segev
Feb 26, 2019·Transplantation·François GaillardChristine A White
Dec 14, 2019·Current Opinion in Organ Transplantation·Luuk B Hilbrands
Mar 19, 2020·American Journal of Transplantation : Official Journal of the American Society of Transplantation and the American Society of Transplant Surgeons·Aaron FleishmanUNKNOWN KDOC Study Group
Dec 11, 2020·Progress in Transplantation : Official Publication, North American Transplant Coordinators Organization ... [et Al.]·Kara Schick-MakaroffDianne LaPointe Rudow
May 31, 2019·Current Opinion in Organ Transplantation·Luckmini LiyanageMacey Henderson

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