Identifying patient-reported outcomes in rheumatoid arthritis: the impact of foot symptoms on self-perceived quality of life

Musculoskeletal Care
S J OtterK Walker-Bone

Abstract

The importance of patient-reported outcome measures in healthcare is increasingly recognized but these need to be patient generated. Given that foot symptoms are very common in rheumatoid arthritis (RA), we chose a patient-centred model with which to investigate the patients' perspective on how their foot symptoms affected them as individuals and impacted on their self-perceived quality of life, rather than using the traditional approaches of clinical examination (e.g. prevalence of deformities) or radiological assessments. A 33-item self-administered postal questionnaire was sent to all people with RA attending outpatient clinics in three hospitals over the course of one month (n=390). The questionnaire used both quantitative and qualitative approaches to enquire about the nature and extent of foot complaints and how respondents believed this affected their quality of life. In total, 190 usable replies were received (49%). Nearly all respondents (n=177; 93.2%) reported that their quality of life was adversely affected by their foot complaint(s), with over half describing their quality of life as being badly or very badly affected. When asked to rate how severely foot complaints affected their quality of life using a 10 cm visu...Continue Reading

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Citations

Oct 12, 2012·Zeitschrift für Rheumatologie·H D Carl, B Swoboda
Sep 24, 2015·Journal of Clinical Rheumatology : Practical Reports on Rheumatic & Musculoskeletal Diseases·Emilia GvozdenovićRobert Bm Landewé
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Apr 23, 2015·Journal of Foot and Ankle Research·Nina LansdowneKeith Rome
Dec 2, 2017·Arthritis Care & Research·Mathilda BjörkAnnette Sverker
Apr 17, 2018·Indian Journal of Critical Care Medicine : Peer-reviewed, Official Publication of Indian Society of Critical Care Medicine·Kapil GuptaJoseph Arnold Fisher
Mar 13, 2019·Nutrition & Diabetes·Jiezhi DaiYimin Chai
Jun 6, 2020·BMC Musculoskeletal Disorders·Marloes Tenten-DiepenmaatMarike van der Leeden
May 20, 2021·International Journal of Older People Nursing·Minna StoltRiitta Suhonen

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