Illness Identity in Adults with a Chronic Illness

Journal of Clinical Psychology in Medical Settings
Leen OrisPhilip Moons

Abstract

The present study examines the concept of illness identity, the degree to which a chronic illness is integrated into one's identity, in adults with a chronic illness by validating a new self-report questionnaire, the Illness Identity Questionnaire (IIQ). Self-report questionnaires on illness identity, psychological, and physical functioning were assessed in two samples: adults with congenital heart disease (22-78 year old; n = 276) and with multisystem connective tissue disorders (systemic lupus erythematosus or systemic sclerosis; 17-81 year old; n = 241). The IIQ could differentiate four illness identity states (i.e., engulfment, rejection, acceptance, and enrichment) in both samples, based on exploratory and confirmatory factor analysis. All four subscales proved to be reliable. Rejection and engulfment were related to maladaptive psychological and physical functioning, whereas acceptance and enrichment were related to adaptive psychological and physical functioning. The present findings underscore the importance of the concept of illness identity. The IIQ, a self-report questionnaire, is introduced to measure four different illness identity states in adults with a chronic illness.

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Citations

May 24, 2018·Journal of the American Heart Association·Liesbet Van BulckPhilip Moons
Nov 6, 2018·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Liesbet Van BulckPhilip Moons
Feb 2, 2019·Journal of Adolescent and Young Adult Oncology·Lila M PereiraJeremy Rosenblum
Apr 27, 2019·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip Moons
Jan 8, 2020·International Journal of Environmental Research and Public Health·Samantha R PaigeMichael Stellefson
Mar 19, 2020·Journal of Clinical Medicine·Caroline AndonianRhoia Neidenbach
Aug 25, 2020·Current Opinion in Organ Transplantation·Amy ColemanAli N Zaidi
Jun 6, 2019·Health Communication·Hannah Getachew-SmithMeredith L Clements
Sep 27, 2020·Journal of Thrombosis and Haemostasis : JTH·Sumedha AryaMichelle Sholzberg
Sep 16, 2020·Journal of Pediatric Gastroenterology and Nutrition·Sonya Meyer, Liron Lamash
Feb 11, 2021·Journal of Behavioral Medicine·Vicki S Helgeson
Sep 27, 2020·International Journal of Behavioral Medicine·Irit HerutiShoshana Shiloh
May 18, 2021·British Journal of Health Psychology·Aisling T O'Donnell, Andrea E Habenicht
Jun 3, 2021·Journal of Clinical Psychology in Medical Settings·Lisa R Miller-MateroKelly Bryce
Jul 25, 2021·Pediatric Blood & Cancer·Stephanie PosaPia Kontos
Dec 6, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Inwon NaPhilip Moons
Dec 21, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip MoonsUNKNOWN APPROACH-IS II consortium and ISACHD

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