Illness trajectories in Mexican children with juvenile idiopathic arthritis and their parents

Rheumatology
I Pelaez-BallestasR Burgos-Vargas

Abstract

We hypothesize that the qualitative approach of socio-cultural aspects in children with juvenile idiopathic arthritis (JIA) and their parents would improve the understanding of their illness. To explain the phenomenon of experiencing JIA within a specific cultural context. The theoretical position of this research was based on the substantive theories of suffering, explanatory models and illness experience. Its design was that of qualitative field, and its analysis followed the interpretative grounded theory methodology. Data were collected by in-depth interviews and notes; tape recordings were transcribed verbatim, read and imported into the ATLAS/ti 4.2 software. Data conceptualization, categorization and interpretation were based on the constant comparison method. A total of 16 adults and six children from 10 families were interviewed. 'Pilgrimage' (metaphorically referred by some of the parents) was a major code in the study that reflected the religious reference to the trajectory of pain, faith and hope. For children, pilgrimage was conformed by immediate concepts; for parents, by historical and immediate experiences influenced by JIA subtype. Pilgrimage was consistent with the model of the illness trajectory theory, which...Continue Reading

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Citations

Aug 16, 2013·Medical Anthropology·Ingris Peláez-BallestasRubén Burgos-Vargas
May 23, 2016·Pediatric Rheumatology Online Journal·Aurélie ChaussetEtienne Merlin
Sep 1, 2016·Qualitative Health Research·Tirsa Colmenares-RoaIngris Peláez-Ballestas
Dec 22, 2012·Qualitative Health Research·Niamh GallagherColin P Bradley
Jan 16, 2020·Pediatric Rheumatology Online Journal·Marcia Daniela Torres-MadeNadina Eugenia Rubio-Pérez
Jul 1, 2020·Reumatología clinica·Rosana QuintanaIngris Peláez-Ballestas

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