Impact of juvenile arthritis on families. An educational assessment

Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association
L KonkolK Lorig

Abstract

State of the art patient education programs have as their goals changes in behaviors, coping styles, health status, and/or costs. The accomplishment of these goals often involves not only the patient but also his or her whole family. This is especially true if the patient is a child. Based on this premise, we undertook an educational needs assessment of 50 children with juvenile arthritis (JA) and their families. Through utilization of a grounded theory methodology, open-ended questionnaires were completed by JA children, their parents, and their siblings. The resulting analysis suggests (1) the need for family-based education, (2) differing needs of various family members, and (3) several hypotheses for further study.

References

Mar 1, 1978·Arthritis and Rheumatism·M J HenochJ Baum
Aug 1, 1986·The Journal of Pediatrics·D DanielsR H Moos

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Citations

Oct 8, 1999·Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association·S E Klepper
Nov 26, 2003·Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association·J H BarlowC C Wright
Oct 18, 2001·Current Opinion in Rheumatology·M A Rapoff
Mar 1, 1995·Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association·K J HagglundR G Frank
Dec 1, 1995·Arthritis Care and Research : the Official Journal of the Arthritis Health Professions Association·S T Reisine
May 15, 2003·Arthritis and Rheumatism·Laura E SchanbergElana C Maurin
Oct 17, 2002·Rheumatic Diseases Clinics of North America·Michael L MillerBrian Feldman
Feb 9, 2006·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Janet E McDonaghTaunton R Southwood
Mar 24, 2005·Journal of Pediatric Psychology·Jennifer Soriano LeBovidgeMichael L Miller

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