PMID: 2503155Jun 17, 1989Paper

Imparting the diagnosis of life threatening illness in children

BMJ : British Medical Journal
H WoolleyJ D Baum

Abstract

The parents of children with life threatening or terminal illnesses were interviewed about their experiences of the way in which they were told the diagnosis. The interview was piloted on 25 families and then administered in a semistandardised manner to a further 45 families. Parents were asked how satisfied they were with the initial discussion about the diagnosis: 23 families were satisfied with how much information they were given; 22 with the information concerning prognosis; 20 with the pacing of the information; 33 with who was present; 32 with arrangements for follow up; and 26 were satisfied overall with the initial discussion. Clear patterns emerged about which elements of the discussion parents appreciated or resented. For example, they valued an open, sympathetic, direct, and uninterrupted discussion of the diagnosis in private that allowed sufficient time for them to take the news in and for doctors to repeat and clarify information. They disliked evasive or unsympathetic brief interviews. All parents remembered vividly the manner in which the diagnosis was imparted, and some were still preoccupied with this many years later. Analyses were carried out to test the possibility that reports of satisfaction and dissatis...Continue Reading

References

Jan 1, 1979·Journal of Learning Disabilities·R J Rockowitz, P W Davidson
Aug 1, 1976·Health & Social Work·D M KaplanA Smith
Dec 1, 1974·Journal of Neurosurgical Nursing·S Passo
May 1, 1970·The Journal of Pediatrics·R W Olmsted
Jul 1, 1984·American Journal of Diseases of Children·L W GreenbergR N Lipnick
Jul 1, 1980·The British Journal of Psychiatry : the Journal of Mental Science·R Fulton, D J Gottesman

❮ Previous
Next ❯

Citations

Jun 14, 2013·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Rachel M KesselAdam Levy
Feb 20, 1993·Lancet·L Fallowfield
Feb 18, 2004·Journal of Pediatric Surgery·Lucia AitePietro Bagolan
Jul 5, 2005·Seminars in Oncology Nursing·Suzanne L NussDeborah A LaFond
Apr 12, 2002·Journal of Psychosomatic Research·Jacqueline BarnesAlan Stein
Jun 19, 2001·Primary Care·S Chaffee
Jul 10, 2003·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Louise SoanesJulie Bayliss
Jun 6, 1998·BMJ : British Medical Journal·D Black
Jan 24, 2006·Pediatric Surgery International·L AiteP Bagolan
Jan 1, 1994·AIDS Care·A PergamiB Gazzard
Mar 1, 1994·Child: Care, Health and Development·A H Krauss-Mars, P Lachman
Nov 14, 2006·Paediatric Respiratory Reviews·John J Collins, Dominic A Fitzgerald
Jul 16, 2008·Pediatric Blood & Cancer·Torrey M Parker, Donna L Johnston
Dec 14, 1999·Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses·M Farrell
Sep 1, 1993·Baillière's Clinical Obstetrics and Gynaecology·G C Forrest
Jan 31, 2006·Research in Developmental Disabilities·Susan Siklos, Kimberly A Kerns
Sep 4, 1999·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·C Taylor
Jan 1, 1994·Palliative Medicine·O B EdenA E Emery
Mar 27, 2015·Autism : the International Journal of Research and Practice·Laura CraneElisabeth Hill
Sep 30, 2010·Autism : the International Journal of Research and Practice·Brigitte ChamakAlain Ehrenberg
Mar 15, 2002·British Journal of Nursing : BJN·A Gatford
Apr 22, 2016·European Journal of Emergency Medicine : Official Journal of the European Society for Emergency Medicine·Gabriela Toutin-DiasAugusto Scalabrini-Neto
Jun 28, 2018·Journal of Autism and Developmental Disorders·Laura CraneElisabeth L Hill
Jan 1, 1994·International Journal of STD & AIDS·A PergamiB Gazzard
Apr 1, 1993·Pediatric Hematology and Oncology·O B EdenA E Emery
Feb 4, 1991·The Medical Journal of Australia·M A AshbyE B Sims
May 27, 2021·Indian Journal of Palliative Care·Arun SadasivanPriya Treesa Thomas
May 3, 2008·Pediatrics·Marcia Levetown, UNKNOWN American Academy of Pediatrics Committee on Bioethics

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.