Implementation of an academic adult primary care clinic for adolescents and young adults with complex, chronic childhood conditions

Journal of Pediatric Rehabilitation Medicine
John C Berens, Cynthia Peacock

Abstract

For the growing population of adolescents and young adults with chronic childhood conditions (AYACCC), the transition from pediatric to adult health care contains many barriers and appropriate adult-based health care options are few. In 2005, the Transition Medicine Clinic (TMC), affiliated with Baylor College of Medicine, was established in Houston, Texas. It is one of the first clinics of its kind and serves AYACCC by providing a medical home in the adult health care system. This article describes the development and implementation of the TMC, its patient population and their resource needs, and lessons learned along the way. We retrospectively examined the electronic health records of 332 patients that established care in the TMC prior to July, 2011. Data were collected describing multiple facets of the patient population and their resource utilization, both in aggregate and for several subgroups. The most common primary diagnoses were cerebral palsy, spina bifida, Down syndrome, genetic conditions, and autism. Patient characteristics demonstrated the unique challenges faced by the clinic: more than 80% received Medicaid, 65% had an intellectual disability, 41% used a wheelchair, and most had multiple secondary diagnoses. Co...Continue Reading

Citations

Jun 10, 2017·Pediatric Annals·Jessica I GoldRita Rossi-Foulkes
Nov 9, 2017·The Journal of Urology·Courtney L ShepardJohn T Stoffel
Nov 21, 2019·Journal of Pediatric Rehabilitation Medicine·Ellen J Fremion, Nienke P Dosa
Oct 21, 2020·JAMA : the Journal of the American Medical Association·Jason F WoodwardMary R Ciccarelli
Feb 7, 2018·The Journal of Urology·Rosalia Misseri
May 31, 2017·Pediatrics·John C BerensChristina M Hanna

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