Improving care delivery and outcomes in pediatric rheumatic diseases

Current Opinion in Rheumatology
Julia G HarrisEsi M Morgan

Abstract

This article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encount...Continue Reading

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Citations

Jul 3, 2017·The Journal of Rheumatology·Shirley L Chow, Kaveh G Shojania
Jan 5, 2019·Current Opinion in Rheumatology·Lucy H LiuJinoos Yazdany
Jul 17, 2019·The Journal of Rheumatology·Lisa BuckleyJon M Burnham
Jun 1, 2019·Current Treatment Options in Pediatrics·Michael TeraoMaitreya Coffey
Jun 7, 2017·Pediatric Rheumatology Online Journal·William B BrinkmanEsi Morgan
Dec 14, 2018·Frontiers in Genetics·Dorothy A FinkShai E Elizur
Oct 29, 2020·Journal of General Internal Medicine·Isomi Miake-LyePaul Shekelle
Jul 13, 2021·Frontiers in Genetics·Kensuly C PiedadeLawrence M Nelson

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