Improving Patient Experience and Primary Care Quality for Patients With Complex Chronic Disease Using the Electronic Patient-Reported Outcomes Tool: Adopting Qualitative Methods Into a User-Centered Design Approach

JMIR Research Protocols
Carolyn Steele GrayCheryl Cott

Abstract

Many mHealth technologies do not meet the needs of patients with complex chronic disease and disabilities (CCDDs) who are among the highest users of health systems worldwide. Furthermore, many of the development methodologies used in the creation of mHealth and eHealth technologies lack the ability to embrace users with CCDD in the specification process. This paper describes how we adopted and modified development techniques to create the electronic Patient-Reported Outcomes (ePRO) tool, a patient-centered mHealth solution to help improve primary health care for patients experiencing CCDD. This paper describes the design and development approach, specifically the process of incorporating qualitative research methods into user-centered design approaches to create the ePRO tool. Key lessons learned are offered as a guide for other eHealth and mHealth research and technology developers working with complex patient populations and their primary health care providers. Guided by user-centered design principles, interpretive descriptive qualitative research methods were adopted to capture user experiences through interviews and working groups. Consistent with interpretive descriptive methods, an iterative analysis technique was used t...Continue Reading

References

Apr 1, 1997·Research in Nursing & Health·S ThorneJ MacDonald-Emes
Feb 6, 2008·International Journal of Medical Informatics·Sofie De RouckMark Leys
Mar 16, 2011·Ageing Research Reviews·Alessandra MarengoniLaura Fratiglioni
Apr 14, 2011·Journal of the American Medical Informatics Association : JAMIA·Julie ChanEdward E Etchells
Mar 2, 2012·The New England Journal of Medicine·David B Reuben, Mary E Tinetti
May 9, 2012·Journal of Medical Internet Research·Joseph A CafazzoMark R Palmert
Feb 6, 2013·Health Affairs·Lygeia RicciardiErin P Siminerio
May 1, 2013·Pediatric Diabetes·Donna S Eng, Joyce M Lee
Sep 24, 2013·Translational Behavioral Medicine·David B BullerMary Klein Buller
Feb 19, 2014·Journal of Clinical Neuroscience : Official Journal of the Neurosurgical Society of Australasia·Geoff AppelboomE Sander Connolly
Aug 8, 2014·JMIR MHealth and UHealth·Stefan BeckerUrs-Vito Albrecht
Jan 23, 2015·JAMA : the Journal of the American Medical Association·Brian W PowersTimothy G Ferris
Feb 12, 2015·BMJ : British Medical Journal·Glenn RobertMelanie Gager
Oct 10, 2012·Journal of Comorbidity·Alexis K SchainkWalter P Wodchis
Oct 8, 2013·Journal of Comorbidity·Susan M SmithMartin Fortin

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Citations

Jun 9, 2016·JMIR Research Protocols·Maria Francesca RomanoFabrizio Alboni
Apr 27, 2019·JMIR MHealth and UHealth·Meshari F AlwashmiMichael D Fetters
Mar 8, 2019·Implementation Science : IS·Sylvia J HysongHouston F Lester
Mar 7, 2020·Computers, Informatics, Nursing : CIN·Shelli Crockett, Heather Carter-Templeton
Sep 8, 2020·Therapeutic Advances in Respiratory Disease·Meshari F AlwashmiJohn Hawboldt
Jan 25, 2017·Evidence-based Complementary and Alternative Medicine : ECAM·Kathryn CurtisJoel Katz
Oct 25, 2017·JMIR MHealth and UHealth·Chitra LallooFiona Campbell
Nov 25, 2018·Journal of Medical Internet Research·Amia EnamHenrik Eriksson
May 11, 2018·The Journal of Asthma : Official Journal of the Association for the Care of Asthma·Alia YousifLucie Blais
Dec 24, 2018·Telemedicine Journal and E-health : the Official Journal of the American Telemedicine Association·Katharine M MitchellAlexis McCarroll
May 17, 2019·Journal of Medical Internet Research·Onil BhattacharyyaEric C Schneider
May 16, 2019·Canadian Journal of Anaesthesia = Journal Canadien D'anesthésie·Janny Xue Chen KeJill L Chorney

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Software Mentioned

Flaticon
PICK
Iconfinder
ePRO

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