Improving Research Literacy in Diverse Minority Populations with a Novel Communication Tool

Journal of Cancer Education : the Official Journal of the American Association for Cancer Education
Melissa A SimonMira L Katz

Abstract

Racial/ethnic minorities are underrepresented in clinical research in the USA for multifarious reasons, including barriers to effective communication between researchers and potential research participants. To address the communication barriers between researchers and potential participants, we developed a Research Literacy Support (RLS) tool. The focus of this report is to present findings from the second and third phases of development that refined and assessed usability of the RLS tool. We utilized a mixed-methods approach that entailed iterative cognitive testing with participants (N = 52) from diverse racial/ethnic backgrounds and interviews with clinical research recruiters (N = 20) to modify and refine the design and content of the RLS tool (phase 2). This was followed by assessment of the usability of the RLS tool by 100 participants (phase 3). During phase 2, participants provided feedback about layout, word choice, and comprehension of the tool. In phase 3, participants recognized that they had gained knowledge about clinical research from the RLS tool, although they still had a substantial learning gap after using the tool, indicating an opportunity for further refinement. The RLS tool may help advance health equity ...Continue Reading

References

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Citations

Oct 9, 2019·International Journal of Environmental Research and Public Health·Hannah M L YoungSimon Conroy

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Software Mentioned

ti
SPSS
REDCap®
Research Literacy Support ( RLS )
Atlas

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