Improving self-management for persons with Parkinson's disease through education focusing on management of daily life: Patients' and relatives' experience of the Swedish National Parkinson School

Journal of Clinical Nursing
Carina HellqvistMärta Sund-Levander

Abstract

To identify and describe experiences valuable for managing daily life after participation in the NPS self-management intervention. The second part was to explore the applicability of the Self- and family management framework by Grey and colleagues for persons with Parkinson's Disease and their relatives. The impact of PD is evident on the lives of both patients and relatives. The National Parkinson School (NPS) is a Swedish self-management programme designed for patients and relatives, aiming at teaching strategies helpful for the ability of self-management, in order to promote life satisfaction. Qualitative explorative with inductive and deductive analysis. Five group discussions with NPS participants were audio-recorded. Verbatim transcriptions were analysed inductively with thematic analysis according to Braun and Clarke, and the findings were then applied deductively to the existing model for patients with chronic disease. Through the first step of inductive analysis, three themes capturing the meaning, value and experience of being a participant at the NPS were identified: exchanging experiences and feeling support, adjustment and acceptance of PD for managing daily life and promoting life satisfaction. The deductive analy...Continue Reading

References

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Citations

Dec 21, 2018·Expert Review of Neurotherapeutics·Danique L M RadderBastiaan R Bloem
Aug 18, 2020·Parkinson's Disease·Stina B JonassonMaria H Nilsson
May 24, 2020·Journal of Parkinson's Disease·Mathilde BoussacUNKNOWN PREDI-STIM study group*
Nov 4, 2020·European Journal of Neurology : the Official Journal of the European Federation of Neurological Societies·Bastiaan R BloemSirwan K L Darweesh
Dec 17, 2020·Behavioral Sciences·Maria H NilssonBjörn Slaug
Mar 7, 2021·International Journal of Environmental Research and Public Health·Carina Hellqvist
Jun 30, 2021·Nursing Outlook·Dena Schulman-GreenMargaret Grey
Aug 28, 2021·International Journal of Environmental Research and Public Health·Lina RosengrenJan Lexell
Oct 2, 2021·Disability and Rehabilitation·Gina WieringaFiona J R Eccles

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