Improving shared decision-making in advanced Parkinson's disease: protocol of a mixed methods feasibility study

Pilot and Feasibility Studies
Frouke A P NijhuisMarjan J Faber

Abstract

In advanced stages of Parkinson's disease (PD), patients and neurologists regularly face complex treatment decisions. Shared decision-making (SDM) can support the process where evidence, the clinician's expertise and the patient's preferences jointly contribute to reach an optimal decision. Here, we describe the rationale of our feasibility study protocol.The aim of the study is to test the feasibility of the SDM intervention by (1) analysing the acceptability of the intervention by users (i.e. professionals and patients), (2) assessing the level of implementation, (3) testing efficacy on a small scale and (4) evaluating the study procedures. Using an uncontrolled before-after mixed methods design, patients in the pre-intervention group will receive information and decisional support as usual. Patients in the post-intervention group will receive the SDM intervention, consisting of an Option Grid™ patient decision aid and a website with supplementary information plus a value clarification tool for both patients and professionals. An Option Grid is a one-page, evidence-based summary of available options, listing the frequently asked questions that patients consider when making treatment decisions. A value clarification tool helps...Continue Reading

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Citations

Jun 15, 2019·Journal of Neurology·Julien F BallyAlfonso Fasano

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Software Mentioned

Option Grid
Option
CollaboRATE
SPSS Package for Social

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