In Their Own Words: A Qualitative Study of Kenyan Breast Cancer Survivors' Knowledge, Experiences, and Attitudes Regarding Breast Cancer Genetics

Journal of Global Oncology
Siwon LeeHelen Dimaras

Abstract

Breast cancer ranks among the most common adult cancers in Kenya. Individuals with a family history of the disease are at increased risk. Mutations most commonly associated with breast cancer affect BRCA1 and BRCA2; mutations in several other genes may also confer breast cancer risk. Genetic testing and counseling can help patients understand their risk and assist clinicians in choosing therapies. We aimed to uncover what patients know, experience, and think with regard to breast cancer genetics in Kenya. Participants included breast cancer survivors age > 18 years. Participants completed a demographic questionnaire before participating in focus group discussions to uncover knowledge of, experiences with, and attitudes toward the genetics of breast cancer. Data were analyzed by inductive thematic analysis. Four focus groups were conducted. Participants had rudimentary knowledge about genetics and cancer development, and although they understood breast cancer could be familial, many suspected environmental factors causing spontaneous disease. They reported limited experience with counseling about genetic risk, perceiving that their physicians were too busy to provide comprehensive information. Many indicated they promoted cancer...Continue Reading

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Citations

Aug 7, 2019·Journal of Genetic Counseling·Maysa Al-HussainiAmal Al-Omari
Dec 12, 2018·BMC Medical Informatics and Decision Making·Li HouJiao Li
Jun 24, 2020·International Journal of Environmental Research and Public Health·Jung Suk ParkKyoung Chun Lee
Mar 31, 2020·Ophthalmology and Therapy·Ana JanicHelen Dimaras
Jul 7, 2021·Journal of Community Genetics·Adrina ZhongHelen Dimaras

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