Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care

The American Journal of Hospice & Palliative Care
Jennifer M SnamanJustin N Baker

Abstract

Education and training for interdisciplinary pediatric providers requires training in principles of palliative and end-of-life (EOL) care. The experiences of bereaved parents can inform and enhance palliative care educational curricula in uniquely powerful and valuable ways. The objective of this study is to present an innovative palliative care educational program facilitated by trained bereaved parents who serve as volunteer educators in local and national palliative care educational forums and to describe how incorporation of bereaved parents in these educational forums affects participant comfort with communication and management of children at the EOL. Parent educators underwent both general and session-specific training and participated in debriefings following each session. Survey tools were developed or adapted to determine how bereaved parent educators affected participant experiences in 3 different educational forums. Pre- and postsession surveys with incorporation of retrospective preprogram assessment items to control for response shift were used in the evaluation of institutional seminars on pediatric palliative and EOL care and role-play-based communication training sessions. Results from feedback surveys sent to ...Continue Reading

References

Aug 10, 2000·Anesthesiology Clinics of North America·M T Carney, D E Meier
Jun 18, 2004·The New England Journal of Medicine·R Sean Morrison, Diane E Meier
Dec 14, 2004·Journal of Palliative Medicine·UNKNOWN American Academy of Hospice and Palliative MedicineUNKNOWN National Hospice and Palliative Care Organization
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Mar 8, 2013·The New England Journal of Medicine·Timothy E Quill, Amy P Abernethy
Aug 20, 2015·The New England Journal of Medicine·Amy S Kelley, R Sean Morrison
Jan 4, 2017·Journal of Pain and Symptom Management·Jennifer M SnamanJustin N Baker

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Citations

Jul 27, 2020·Pediatric Blood & Cancer·Erica C KayeHolly Spraker-Perlman
Nov 21, 2018·International Journal of Palliative Nursing·Karen Heggs
Jun 2, 2021·Journal of Pain and Symptom Management·Amy S PorterErica C Kaye
Jul 3, 2021·Children·Holly L Spraker-Perlman The St Jude Quality Of Life Steering Council
Sep 15, 2021·Pediatrics·Gitanjli AroraJanet R Serwint

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