Incorporating patient perspectives in health technology assessments and clinical practice guidelines

Research in Social & Administrative Pharmacy : RSAP
Katri Hämeen-AnttilaR Sipilä

Abstract

Ensuring patient involvement in health technology assessments (HTAs) and clinical practice guidelines (CPGs) is important. However, the goals and methods of such involvement are not always clear. The aim of this study was to 1) discover ways to involve patients in HTA and CPG processes, 2) describe challenges, and 3) find ways of informing patients about HTAs and CPGs in Finland. As part of a one-day seminar targeted at representatives of patient organizations (POs), 3, 1-h focus group discussions were held (n = 20, with 14 PO representatives). PO representatives included real patients and health care professionals working in the organizations. The discussions were tape-recorded, transcribed, and thematically analyzed. Focus group participants highlighted the importance of gathering patient views from a group of patients, rather than individuals. Surveys through POs were the most frequently mentioned means of gathering patients' views. PO representatives reported interest in cooperating in HTA and CPG processes. The most often mentioned challenges were finding appropriate representatives for the target group and conveying information about HTAs and CPGs to patients. Multichannel communication was seen as essential. Furthermore ...Continue Reading

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Citations

May 10, 2020·International Journal of Technology Assessment in Health Care·Robert J MasonKatarzyna J Jerzak
Jun 29, 2018·BJS Open·K J M O'DonoghueL H M Pengel
Jul 14, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Claire KimAnna R Gagliardi
Dec 4, 2020·International Journal of Technology Assessment in Health Care·Ana Toledo-ChávarriUNKNOWN Patient Involvement Interest Group of the Spanish Network for Health Technology Assessment of the National Health System (Re
Feb 6, 2021·International Journal of Technology Assessment in Health Care·Marie-Pierre GagnonValentina Beretta
Feb 10, 2021·International Journal of Technology Assessment in Health Care·Julia BidondeJulia Abelson
Feb 20, 2021·Human Vaccines & Immunotherapeutics·Desmond CurranLinda Nelsen
Dec 16, 2021·JAMA Network Open·Manuel M Montero-OdassoUNKNOWN Task Force on Global Guidelines for Falls in Older Adults

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