Influence of macrostructure of society on the life situation of families with a child with intellectual disability: Sweden as an example

Journal of Intellectual Disability Research : JIDR
M B Olsson, P C Hwang

Abstract

Most studies on families with children with intellectual disability (ID) have been carried out in the UK or the USA, and are influenced by the societal organization, and political and economic climate of those countries. In the USA and the UK, the care and well-being of children, with or without ID, are seen almost exclusively as the individual family's responsibility. In Sweden, the care and well-being of children are seen more as a joint responsibility. Swedish society has developed many privileges for all parents in order to help them care for their children, and the support for parents of children with disabilities is provided exclusively by the Government and the community. The overall question explored in this descriptive, quantitative and qualitative study was: Are families in Sweden experiencing the stressors and life situations described in the studies of parents in more individualistic societies? Two hundred and twenty-six families with children with ID and 234 control families with children ranging from 0 to 16 years of age answered mail surveys. Taken together, parents in Sweden describe most of the stressors proposed in the international literature with the exception of financial strain. Restricted social life and ...Continue Reading

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Citations

Jan 12, 2013·Journal of Autism and Developmental Disorders·Leah JonesMichael A Petalas
Apr 1, 2014·American Journal on Intellectual and Developmental Disabilities·Leah JonesNeisha Rhule
Jul 25, 2009·European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society·Lena E SvedbergElisabet Stener-Victorin
Mar 27, 2007·Journal of Pediatric Nursing·Marcia Van Riper
Nov 15, 2006·Journal of Intellectual Disability Research : JIDR·M B Olsson, C P Hwang
Nov 10, 2007·Journal of Intellectual Disability Research : JIDR·Z Stoneman
Sep 28, 2010·Journal of Intellectual Disability Research : JIDR·A Norizan, K Shamsuddin
Apr 27, 2012·Journal of Intellectual Disability Research : JIDR·D Norlin, M Broberg
Sep 15, 2011·American Journal of Medical Genetics. Part a·Brian G SkotkoRichard Goldstein
May 21, 2013·Journal of Intellectual Disability Research : JIDR·C-Y Hsiao
Feb 12, 2010·Journal of Intellectual Disability Research : JIDR·A Dabrowska, E Pisula
Mar 11, 2015·Journal of Applied Research in Intellectual Disabilities : JARID·Lu Pan, Jingzhong Ye
Oct 24, 2015·Journal of Applied Research in Intellectual Disabilities : JARID·Jan Tøssebro, Christian Wendelborg
Nov 13, 2013·Australasian Psychiatry : Bulletin of Royal Australian and New Zealand College of Psychiatrists·Chad Bennett
May 7, 2013·Journal of Intellectual Disabilities : JOID·Herawati I NowakMikaela Starke
Oct 20, 2007·Autism : the International Journal of Research and Practice·Sarah Hamlyn-WrightJason Ellis
Mar 28, 2021·Current Opinion in Genetics & Development·Daniel Moreno-De-Luca, Christa Lese Martin
Aug 25, 2021·American Journal on Intellectual and Developmental Disabilities·Tracy J RaulstonLaura Lee McIntyre

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