Informal caregivers of clients with neurological conditions: profiles, patterns and risk factors for distress from a home care prevalence study

BMC Health Services Research
Lori A MitchellLynn Martin

Abstract

Individuals living in the community with neurological conditions receive the majority of their care from informal caregivers. The purpose of this project was to provide a profile of caregivers of home care clients with neurological conditions. The study also examined prevalence of caregiver distress and the association between neurological conditions and other client and caregiver characteristics with distress. The study population included Canadian home care clients in the Winnipeg Regional Health Authority in Manitoba and in the province of Ontario. Clients with RAI-Home Care (RAI-HC) assessment data from 2003 to 2010 were examined. Neurological conditions of interest included Alzheimer's disease and related dementias, multiple sclerosis, amyotrophic lateral sclerosis, Parkinson's disease, Huntington disease, epilepsy, muscular dystrophy, cerebral palsy, traumatic brain injury, spinal cord injury, and stroke. Descriptive statistics were analyzed to describe home care client characteristics and caregiver characteristics for each neurological condition. Logistic regression analysis was used to identify risk factors associated with caregiver distress. A substantial proportion of home care clients were found to have one or more o...Continue Reading

References

Jul 1, 1994·Journal of Gerontology·J N MorrisL A Lipsitz
Aug 1, 1997·Journal of the American Geriatrics Society·J N MorrisE Topinková
Jan 5, 2000·The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences·J N MorrisS A Morris
Nov 27, 2002·The Gerontologist·Neena L Chappell, R Colin Reid
Jan 16, 2003·The American Journal of Geriatric Psychiatry : Official Journal of the American Association for Geriatric Psychiatry·Igor GrantThomas L Patterson
Jan 22, 2003·Journal of the American Geriatrics Society·John P HirdesGary F Teare
Apr 3, 2003·Journal of Psychosomatic Research·William S ShawIgor Grant
Sep 23, 2003·Health & Social Care in the Community·Alison Bowes, Heather Wilkinson
Feb 3, 2005·Spinal Cord·M W M PostL P de Witte
May 10, 2005·Nursing & Health Sciences·Ronelle McConaghy, Marie Louise Caltabiano
Feb 16, 2006·Journal of Gerontological Nursing·Jeff A Small, Julian Montoro-Rodriguez
Apr 28, 2006·Clinical Nursing Research·Katrin BoströmHelena Sunvisson
Jul 6, 2006·Journal of Neurology, Neurosurgery, and Psychiatry·D AarslandJ L Cummings
Nov 24, 2006·Journal of Rehabilitation Research and Development·David X CifuMark S Baron
Jul 9, 2008·Disability and Rehabilitation·Marcia Finlayson, Chi Cho
Jul 9, 2008·Scandinavian Journal of Occupational Therapy·Gunilla IsakssonLisa Skär
Aug 19, 2008·Movement Disorders : Official Journal of the Movement Disorder Society·Pablo Martinez-MartinUNKNOWN Longitudinal Parkinson's Disease Patient Study (Estudio longitudinal de pacientes con enfermedad de Parkinson-ELEP) Group
Sep 13, 2008·Journal of the American Academy of Nurse Practitioners·Lynn EttersBarbara E Harrison
Oct 9, 2008·BMC Health Services Research·Asmahan F AlshubailiAsser A Mabrouk
Mar 21, 2009·Brain Injury : [BI]·Diana JacksonKathryn M McPherson
Jun 1, 2010·Archives of Physical Medicine and Rehabilitation·Samantha L BackhausJames F Malec
Jun 22, 2010·Health & Social Care in the Community·Aileen Kenneson, Janet Kay Bobo
Dec 4, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Elodie J O'Connor, Marita P McCabe
Dec 15, 2010·Psychology, Health & Medicine·Francesco PagniniEnrico Molinari

❮ Previous
Next ❯

Citations

Nov 11, 2017·BMC Health Services Research·Raquel S D BetiniGeorge Heckman
Aug 25, 2018·Psychology, Health & Medicine·Francesco TramontiMaria Chiara Carboncini
Aug 16, 2019·Canadian Journal on Aging = La Revue Canadienne Du Vieillissement·Jeffrey PossJohn Hirdes
Nov 1, 2017·BMC Medical Informatics and Decision Making·Sophie E HogeveenJohn P Hirdes
Jul 17, 2020·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Samar M AounNatasha Bear
Sep 11, 2020·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Samar M AounDavid W Kissane
Dec 3, 2020·Psychology Research and Behavior Management·Noelia Durán-GómezMacarena C Cáceres
Apr 23, 2021·Revista da Escola de Enfermagem da U S P·Fernanda Duarte SiqueiraSteffani Nikoli Dapper

❮ Previous
Next ❯

Software Mentioned

MAPLe
- Care ( RAI - HC )
Statistical Analysis System ( SAS )
RAI

Related Concepts

Related Feeds

Amyloid Lateral Sclerosis

Amyotrophic Lateral Sclerosis (ALS) is a progressive nervous system disease associated with the death of neurons that control voluntary muscles. Discover the latest research on ALS here.

Brain Injury & Trauma

brain injury after impact to the head is due to both immediate mechanical effects and delayed responses of neural tissues.

Birth Defects

Birth defects encompass structural and functional alterations that occur during embryonic or fetal development and are present since birth. The cause may be genetic, environmental or unknown and can result in physical and/or mental impairment. Here is the latest research on birth defects.