Information-seeking behaviour among people with motor neurone disease

British Journal of Nursing : BJN
Mary R O'Brien

Abstract

This qualitative study employed indepth, semistructured audiotaped interviews with seven people with motor neurone disease (MND) to explore their desire for information about MND and their experiences in seeking and obtaining such information. Factors affecting their information-seeking behaviour were identified through a process of interpretative phenomenological analysis. Three distinct information-seeking categories emerged. Active seekers personally acquired information from a variety of sources. Selective seekers had access to information but often relied on 'buffers' to filter out unsuitable material. Information avoiders almost always used a 'buffer' to pre-screen any information to which they were exposed. All participants described negative effects on being exposed to unsolicited information, often in the form of media coverage. This work highlights the impact of unsolicited information on people with MND, an area not previously studied.

References

Jul 1, 1995·Journal of Advanced Nursing·K A LukerJ A Sloan
Aug 1, 1994·Journal of Neurology, Neurosurgery, and Psychiatry·P N Leigh, K Ray-Chaudhuri
Sep 21, 1996·BMJ : British Medical Journal·C MeredithL Fallowfield
Jun 16, 1999·Social Science & Medicine·J S KutnerP L Barton
Mar 31, 2000·BMJ : British Medical Journal·G M LeydonK McPherson
Jul 13, 2000·European Journal of Cancer Care·B van der Molen
May 23, 2002·Patient Education and Counseling·Femke T C BennenbroekBrigit Grol
Apr 12, 2003·British Journal of Nursing : BJN·Richard Green

❮ Previous
Next ❯

Citations

Jan 7, 2016·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Sungha KimSungchul Kim
Mar 8, 2008·European Journal of Neurology : the Official Journal of the European Federation of Neurological Societies·P Wicks, J Frost
Jun 25, 2015·International Journal of Palliative Nursing·Caroline Gale
Jul 29, 2011·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Kori A LaDonna
Mar 25, 2009·Amyotrophic Lateral Sclerosis : Official Publication of the World Federation of Neurology Research Group on Motor Neuron Diseases·Heino HugelCarolyn A Young
Mar 25, 2021·Journal of Pain and Symptom Management·Jacqueline GillespieChristine L Watt

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

British Journal of Community Nursing
Gill HurstAngela Dickinson
European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society
Ebru Kilicarslan-Toruner, Ebru Akgun-Citak
© 2021 Meta ULC. All rights reserved