PMID: 12766043May 27, 2003Paper

Information sources and their use by parents of children with ophthalmic disorders

Investigative Ophthalmology & Visual Science
Jugnoo S RahiKatharine Barr

Abstract

Parents' input is critical to clinical management in pediatric ophthalmology. The importance of providing parents with appropriate information to enable them to participate effectively is recognized. However, little is known about the range of sources parents use to learn about their child's ophthalmic condition, which sources they find most useful, and how this relates to their understanding. Cross-sectional survey of the parents or usual caregivers of children with diverse ophthalmic disorders, diagnosed at least 1 year earlier, who attended pediatric ophthalmology clinics at Great Ormond Street Hospital, London, during 1 week in August 2001. Eighty-nine percent (n = 58) of parents with eligible children participated. Most parents received information from more than one source, with ophthalmologists (79%) and family practitioners (42%) being the two most frequently reported. Family support groups and voluntary organizations (29%) and the Internet (23%) were less commonly cited than anticipated. Parents reported receiving verbal information much more frequently than written information from professionals working with their children. Although 72% (n = 42) of parents could correctly name their child's diagnosis, only 46% (n = 27...Continue Reading

Citations

Oct 22, 2008·Journal of Genetic Counseling·Myra I Roche, Debra Skinner
Jun 20, 2008·Journal of Paediatrics and Child Health·Kaylyn KhooRan D Goldman
Dec 21, 2006·Health Information and Libraries Journal·Jacquelyn A BurkellJeffrey W Jutai
Apr 23, 2008·Ophthalmic & Physiological Optics : the Journal of the British College of Ophthalmic Opticians (Optometrists)·Julie LennonSus Biswas
May 19, 2004·The British Journal of Ophthalmology·J Keeffe
Mar 3, 2012·Research in Social & Administrative Pharmacy : RSAP·Miina HolappaKatri Hämeen-Anttila
Jan 26, 2005·Cyberpsychology & Behavior : the Impact of the Internet, Multimedia and Virtual Reality on Behavior and Society·Janet M Morahan-Martin
Apr 1, 2011·Patient Education and Counseling·Beniamino Palmieri, Tommaso Iannitti
Jan 19, 2010·Clinical Pediatrics·Emma SciberrasJulie Green
Sep 3, 2019·Public Health Nutrition·Shelley M VanderhoutJonathon L Maguire

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