Initial User Testing of Decision Aids for Multiple Sclerosis Disease-Modifying Therapies.

The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses
Hasna HakimBrant J Oliver

Abstract

Disease-modifying therapies (DMTs) are the cornerstone of multiple sclerosis (MS) treatment. DMT treatment is a preference-sensitive decision in which shared decision making is indicated. We used qualitative methods to explore usability of MS decision aids in people aged 18 to 70 years diagnosed with MS. Semistructured interviews aimed to assess patients' overall reaction to using the decision aids. This included specific aspects of the user experience to improve readability, format, content, and patient opinions about whether the integration of the decision aids into visits with MS clinicians would be feasible and assist with making better DMT selections. Twenty-three interviews were completed with eligible patients with MS aged 18 to 70 years to improve readability. Using thematic analysis, 5 themes emerged from the analysis including decision aids are easy and understandable, include cost, prioritize side effects and tests, increase font size, and have a simpler injectable grid. We also identified areas for improvement including formatting, side effects of DMT options, transparency of data sources, research, and development. Overall findings suggest that the decision aids are usable, easy to understand, and helpful to facili...Continue Reading

References

Oct 24, 2013·Practical Neurology·Robert P SealPhilip E M Smith
Jan 1, 2016·Multiple Sclerosis Journal - Experimental, Translational and Clinical·Erin E LongbrakeAmber Salter
Aug 6, 2017·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Katharine KinseyFiona Wood
Nov 2, 2017·The Journal of Nursing Education·Kerry Milner, Marie O'Connor
Dec 15, 2017·Multiple Sclerosis and Related Disorders·UNKNOWN Members of the MS in the 21st Century Steering Group:Ali-Frédéric Ben-Amor
Mar 13, 2018·Expert Opinion on Pharmacotherapy·Paulus S Rommer, Uwe K Zettl
Sep 12, 2018·Annals of Allergy, Asthma & Immunology : Official Publication of the American College of Allergy, Asthma, & Immunology·Michael S BlaissTonya Winders
Nov 30, 2018·BMJ : British Medical Journal·Floriana De AngelisWallace J Brownlee
Dec 21, 2018·International Journal of MS Care·Aliza Ben-ZachariaTracy Walker
Feb 17, 2019·Neurology·Mitchell T WallinUNKNOWN US Multiple Sclerosis Prevalence Workgroup

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Citations

Sep 5, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Eluned PriceJo Lane
Jan 11, 2022·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Mohamed Toufic El Hussein, Ashley Wong

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