PMID: 9556937Apr 29, 1998Paper

Involvement of relatives in the care of the dying in different care cultures: involvement in the dark or in the light?

Cancer Nursing
B Andershed, B M Ternestedt

Abstract

The aim of this prospective study was to increase existing knowledge about the involvement of relatives in care of the dying and to shed light on the relatives' sense of coherence. Six relatives were followed via qualitative interviews during the patients' final period of life and after their deaths. The patients died in different forms of care: surgical department, nursing home, inpatient hospice ward, and at home. What the relatives had in common was that they had, in different ways, followed the patient from the first symptoms, through different forms of care, up until death. Some participated very actively in the care. Relatives' involvement in care can be described as involvement in the light or involvement in the dark. Involvement in the light is based on a trusting relationship between the family and the staff. Involvement in the dark is based on insufficient interplay and collaboration, in which the relatives are not seen or acknowledged by the staff, but instead must grope around in the dark when they try to support the patient. Rapid course of illness can be a risk factor for involvement in the dark. It seems that the relatives' sense of coherence was an important factor enabling them to be involved in the light. Huma...Continue Reading

References

Mar 1, 1975·Nursing Research·S O Hampe
Jan 1, 1992·The Hospice Journal·J E Warner
Oct 1, 1992·Cancer Nursing·S ChaitchikR Algor
Apr 1, 1991·Cancer Nursing·M M Hull
Mar 1, 1990·Journal of Surgical Oncology·M A KeitelC Karakousis
Jan 1, 1990·The Hospice Journal·N Martens, B Davies
Apr 1, 1989·Journal of Advanced Nursing·G C Sullivan
Jan 1, 1986·The Hospice Journal·J M Kirschling
May 1, 1981·Journal of Advanced Nursing·M Knight, D Field
May 1, 1980·Journal of Advanced Nursing·A P Griffin
Jan 1, 1995·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·W AstudilloJ P Horcajada
Feb 1, 1994·Cancer Nursing·L J Kristjanson, T Ashcroft
Apr 1, 1996·Cancer Nursing·V HarringtonM F Gates
Jan 1, 1997·Scandinavian Journal of Caring Sciences·B Andershed, B M Ternestedt

❮ Previous
Next ❯

Citations

Dec 21, 2002·European Journal of Cancer Care·P HudsonN McMurray
Nov 13, 2002·Journal of Clinical Nursing·Jill Main
Mar 9, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Ellen Karine GrovTorbjørn Moum
Jun 14, 2001·Journal of Advanced Nursing·B Andershed, B M Ternestedt
Jan 16, 2008·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Li-Yun TsaiTse-Yun Change
Nov 19, 2003·Journal of Palliative Medicine·Anna MilbergSusanne Börjesson
Mar 11, 2004·Journal of Palliative Medicine·Peter L HudsonLinda J Kristjanson
Sep 2, 2008·Scandinavian Journal of Occupational Therapy·Annica E M Johansson, Ulla Johansson
Dec 15, 2010·Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses·Birgitta EngströmAsa Engström
Sep 14, 2004·Journal of Clinical Nursing·Eva BenzeinBritt-Inger Saveman
Jun 26, 2007·European Journal of Cancer Care·C Melin-JohanssonE Danielson
Dec 6, 2005·Scandinavian Journal of Caring Sciences·J David EdvardssonBirgit Holriz Rasmussen
Jul 27, 2006·Journal of Advanced Nursing·David EdvardssonBirgit Rasmussen
Sep 20, 2012·European Journal of Cancer Care·K MystakidouA Gouliamos
May 16, 2012·Journal of Clinical Nursing·Berit MunckJan Mårtensson
Oct 6, 2010·Journal of Clinical Nursing·Cristina G VivarAnne McQueen
Nov 28, 2009·Journal of Advanced Nursing·Hung-Lan Wu, Deborah L Volker
May 9, 2014·Journal of Clinical Nursing·Lena AxelssonSissel Andreassen Gleissman
Jan 21, 2006·Journal of Advanced Nursing·Genevieve ThompsonPaul Daeninck
Jul 10, 2003·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·M Kuuppelomäki
Sep 17, 2002·Journal of Advanced Nursing·Chris BaileyMeinir Krishnasamy
Nov 5, 2002·The Gerontologist·Jeanie Kayser-Jones
Jan 18, 2018·European Journal of Cancer Care·E PartanenE Haavisto
Mar 30, 2002·International Journal of Palliative Nursing·Esther MokEllen Yeung
May 20, 2004·International Journal of Palliative Nursing·Tineke A Abma
Aug 2, 2007·Cancer Nursing·Ewa EkwallBengt Sorbe
Nov 21, 2009·Cancer Nursing·Märit Linderholm, Maria Friedrichsen
Aug 4, 2009·International Journal of Palliative Nursing·Elisabeth Spichiger
Jun 4, 2020·Journal of Gerontological Nursing·Ann M MayoGuerry M Peavy
May 6, 2017·Scandinavian Journal of Caring Sciences·Benedicte Carlsen, Kjetil Lundberg
Jun 20, 2008·International Journal of Palliative Nursing·Elisabeth Spichiger
Oct 5, 2011·Journal of Neuro-oncology·Claudia Yvonne FinocchiaroAndrea Salmaggi
Dec 28, 2021·Scandinavian Journal of Caring Sciences·Johanna SaarinenElina Haavisto

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses
Ingrid WåhlinEwa Idvall
Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses
Ingrid WåhlinEwa Idvall
Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses
Marion Mitchell, Wendy Chaboyer
© 2022 Meta ULC. All rights reserved