Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement.

Research Involvement and Engagement
Louise LocockGlenn Robert

Abstract

Patient or user involvement in health research is well-established but is often limited to advising on research questions and design, leaving researchers to collect and analyse 'data' (which in this paper means written copies of interviews with patients about their experiences). We were working with sets of interviews with 1) young people with depression and 2) people with experiences of stroke. We were looking for key themes that it would be useful for the NHS to know about, and we developed short films which healthcare staff can use to think about how to make care more patient-centred. We wanted to see what user involvement in this analysis would bring, and how best to achieve it practically.After the researcher team had analysed the interviews, we ran two one-day workshops with people with relevant experience as a patient/service user or carer. We gave them some brief training in how to analyse interviews and how they might be used for improving the quality of care. Then we looked at extracts from the interviews, and discussed whether people could see the same themes as the researcher.People identified similar themes to the researcher, but also identified new details the researcher had missed. However, they felt reading larg...Continue Reading

References

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Sep 10, 2009·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Irene Tuffrey-Wijne, Gary Butler
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Oct 25, 2017·Research Involvement and Engagement·Kristina StaleyClaire Nolan
Aug 20, 2016·Research Involvement and Engagement·S GarfieldB D Franklin

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Citations

Mar 31, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Anne-Marie BoylanSophie Staniszewska
May 16, 2020·International Journal of Older People Nursing·Emma Pascale BlakeySiobhan O'Connor
Sep 9, 2020·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Ben BowersStephen Barclay
Jan 8, 2020·International Journal of Environmental Research and Public Health·Lampros Samartzis, Michael A Talias
Jul 24, 2020·Research Involvement and Engagement·Pernille Christiansen SkovlundKirsten Lomborg
Jul 9, 2020·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Michael F HoffmanErica Sood
May 12, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Rachel StockerBarbara Hanratty
Jun 9, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Antonia KoweStefan Teipel
Aug 30, 2021·BMC Medical Research Methodology·Natalie BradfordAlison Bowers

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Methods Mentioned

BETA
Cognitive Behavioural Therapy

Software Mentioned

Healthtalk
INVOLVE

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