It takes a (virtual) village: crowdsourcing measurement consensus to advance survivorship care planning

Translational Behavioral Medicine
Carla ParryBradford W Hesse

Abstract

We report results from the use of an innovative tool (the Grid-Enabled Measures (GEM) database) to drive consensus on the use of measures evaluating the efficacy and implementation of survivorship care plans. The goal of this initiative was to increase the use of publicly available shared measures to enable comparability across studies. Between February and August 2012, research and practice communities populated the GEM platform with constructs and measures relevant to survivorship care planning, rated the measures, and provided qualitative feedback on the quality of the measures. Fifty-one constructs and 124 measures were entered into the GEM-Care Planning workspace by participants. The greatest number of measures appeared in the domains of Health and Psychosocial Outcomes, Health Behaviors, and Coordination of Care/Transitional Care. Using technology-mediated social participation, GEM presents a novel approach to how we measure and improve the quality of survivorship care.

References

Jul 5, 2006·Journal of the National Cancer Institute·Charles A SklarLeslie L Robison
Jan 18, 2011·The Breast : Official Journal of the European Society of Mastology·Meagan E BrennanFrances M Boyle
Mar 8, 2011·Computer·Bradford W HesseJohn C Thomas
May 6, 2011·American Journal of Preventive Medicine·William ChismarAbdul R Shaikh
May 6, 2011·American Journal of Preventive Medicine·Richard P MoserKisha Coa
Aug 24, 2011·Journal of Health Communication·Bradford W HesseLila J Finney Rutten
Oct 5, 2011·Journal of Cancer Survivorship : Research and Practice·Carrie Tompkins StrickerSteven C Palmer
Nov 2, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Eva GrunfeldMark N Levine
Nov 2, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Thomas J Smith, Claire Snyder
Feb 1, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Carrie Tompkins StrickerSteven C Palmer
Feb 1, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Michael JeffordJon Emery
Mar 16, 2012·Journal of Psychosocial Oncology·Leigh Anne FaulPaul B Jacobsen
Mar 20, 2012·Critical Care Medicine·Peter E Morris
Sep 26, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Craig C Earle, Patricia A Ganz
Oct 2, 2012·Journal of Health Communication·Richard P MoserBradford W Hesse
Nov 22, 2012·Circulation. Cardiovascular Quality and Outcomes·T Bruce Ferguson
Nov 28, 2012·Journal of Oncology Practice·Deborah K MayerSophia K Smith
Jun 26, 2013·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Carla ParryJulia H Rowland
Jul 11, 2014·Journal of the American Medical Informatics Association : JAMIA·Ronald MargolisEric D Green

❮ Previous
Next ❯

Citations

Sep 30, 2017·Cancer Medicine·Young Ji LeeHeidi S Donovan
Jan 16, 2019·Journal of Cancer Survivorship : Research and Practice·Katherine R SterbaTerry A Day
Feb 20, 2019·Disability and Rehabilitation·Timothy F MarshallMackenzi Pergolotti
May 26, 2018·Translational Behavioral Medicine·Tim ShawDavid Currow
Jan 6, 2019·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Alexandra HuaAmye J Tevaarwerk

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Ostomy/wound Management
Lia van Rijswijk
Hospitals & Health Networks
A M Nordhaus-Bike
Journal of the National Cancer Institute
Karyn Hede
© 2022 Meta ULC. All rights reserved