"It's challenging on a personal level"--exploring the 'lived experience' of Australian and Canadian prenatal genetic counselors.

Journal of Genetic Counseling
Melody A MenezesSylvia A Metcalfe

Abstract

Prenatal genetic counselors work with clients who are at risk of having a child with a fetal anomaly, or who have been diagnosed with a fetal anomaly. This can raise challenging ethical, moral and legal issues for both clients and counselors. Few studies have explored whether this type of work impacts on genetic counselors themselves. Interviews were conducted with 15 prenatal genetic counselors, five from Toronto, Canada and ten from Melbourne, Australia. A qualitative approach was used to allow for an in-depth exploration of the experiences of genetic counselors working in the prenatal setting. While participants reported that working in a prenatal setting affected them in several ways, this paper focuses on one particular unanticipated finding--that of the impact experienced by counselors from both countries while working when pregnant.

References

Feb 27, 2001·BMJ : British Medical Journal·B Biesecker
Nov 2, 2002·Journal of Clinical Psychology·Charles R Figley
Jan 18, 2003·Journal of Genetic Counseling·J RoggenbuckC Ludowese
Dec 18, 2004·Journal of Genetic Counseling·Elizabeth PetersBonnie S LeRoy
Jun 14, 2006·Journal of Genetic Counseling·Brittany C ThomasBonnie S Leroy
Sep 22, 2006·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Linda D Vallino-NapoliJane L Halliday
Feb 24, 2007·Journal of Genetic Counseling·Lacey G BenoitBonnie S LeRoy
Mar 3, 2007·Journal of Genetic Counseling·Anna MiddletonAlison Clarke
Mar 3, 2007·Journal of Genetic Counseling·Anna MiddletonAnnette Landy
Jun 27, 2007·Archives of Internal Medicine·Susan H McDanielRonald M Epstein
Oct 16, 2007·Journal of Genetic Counseling·Patricia McCarthy VeachBonnie S Leroy
Nov 15, 2007·Qualitative Health Research·Helene Starks, Susan Brown Trinidad
Mar 26, 2010·Journal of Genetic Counseling·Kit Clark
Dec 2, 2008·Annals of Internal Medicine·Diane S MorseMary Catherine Beach
Oct 1, 2000·Journal of Genetic Counseling·A L Kennedy
Oct 1, 2000·Journal of Genetic Counseling·A L Kennedy
Oct 1, 2000·Journal of Genetic Counseling·E Hiller, J M Rosenfield
Aug 1, 2002·Journal of Genetic Counseling·Patricia McCarthy VeachBonnie S LeRoy
Aug 1, 2002·Journal of Genetic Counseling·Stephanie A Vokits Cohen
Aug 1, 2002·Journal of Genetic Counseling·Kathleen D Valverde
Aug 1, 2002·Journal of Genetic Counseling·Kristina Keilman
Aug 1, 2002·Journal of Genetic Counseling·Kristal Hagemoser-Platt, Gwen Reiser
Aug 1, 2002·Journal of Genetic Counseling·Sandy Woo
Aug 1, 2002·Journal of Genetic Counseling·Bonnie Hatten
Aug 1, 2002·Journal of Genetic Counseling·Tillie Young
Aug 1, 2002·Journal of Genetic Counseling·Courtney Drake
Aug 1, 2002·Journal of Genetic Counseling·Susan Schmerler
Aug 1, 2002·Journal of Genetic Counseling·Caroline Lieber
Aug 1, 2002·Journal of Genetic Counseling·Laila Rhee Morris
Aug 1, 2002·Journal of Genetic Counseling·Janice G Edwards
Aug 1, 2002·Journal of Genetic Counseling·Patricia McCarthy VeachBonnie S LeRoy
Feb 1, 2005·Medical Journal, Armed Forces India·Sushil KumarM Togra

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Citations

Nov 1, 2011·Journal of Genetic Counseling·Jan Hodgson, Jon Weil
Oct 22, 2011·Journal of Genetic Counseling·Melody Ann Menezes
May 10, 2015·Journal of Genetic Counseling·Colleen WherleyBonnie S LeRoy
Mar 2, 2019·Journal of Genetic Counseling·Karina LikerKelly E Ormond
Jan 20, 2020·Acta Obstetricia Et Gynecologica Scandinavica·Stina LouIda Vogel
Mar 19, 2014·Birth·Melody A MenezesSylvia A Metcalfe
Nov 26, 2020·Journal of Genetic Counseling·Fiona LynchBelinda McClaren

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