'It's hard but you've just gotta get on with it'--The experiences of growing-up with a liver transplant

Psychology & Health
Jessica WrightJo Wray

Abstract

The successful evolution of paediatric liver transplantation means that increasing numbers of young people survive into adulthood. Non-adherence to medication regimens leading to liver dysfunction, graft loss and patient death are prevalent in this vulnerable group. Insight into young people's experiences of living with a liver transplant (LTx) is vital to improve outcomes and guide future work in this area. Through semi-structured interviews, this study explored the experiences of living with a LTx for 13 young people transplanted as children and adolescents. Interviews were analysed using interpretative phenomenological analysis, revealing that young people felt different from their peers as a result of their LTx. Young people's perceptions of their scar, experiences of illness symptoms and taking medications acted as triggers of differences. This led to an ongoing struggle to be normal when faced with typical activities for young people and to attempts to take back control. Findings support the implementation of routine psychosocial screening to identify additional support needs and the development of a peer mentoring programme to allow young people to gain social support, thus reducing feelings of being different. It is hop...Continue Reading

References

Jan 19, 2000·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·B W GraetzM G Sawyer
Oct 7, 2000·Journal of Clinical Nursing·H KyngäsT Kroll
Jan 19, 2002·Qualitative Health Research·Barbara V Wise
Feb 2, 2002·Journal of Clinical Nursing·H Kyngas, M Rissanen
Aug 15, 2002·Journal of Developmental and Behavioral Pediatrics : JDBP·Annette M La GrecaHannah Moore
Feb 27, 2003·Journal of Clinical Nursing·Dorothy Horsburgh
Sep 24, 2004·Archives of Disease in Childhood·J-C SurisR Viner
Oct 28, 2004·Nursing & Health Sciences·Helvi Kyngäs
May 5, 2005·Epilepsy & Behavior : E&B·Gus A BakerHelen Soteriou
May 29, 2007·Health and Quality of Life Outcomes·David B NicholasAnne M Griffiths
Nov 4, 2008·Pediatrics·Joan-Carles SurísSusan M Sawyer
Nov 6, 2008·Social Cognitive and Affective Neuroscience·Suparna ChoudhuryTony Charman
Aug 4, 2009·Diabetic Medicine : a Journal of the British Diabetic Association·H HamblyUNKNOWN DEPICTED Study Team
May 6, 2010·Qualitative Health Research·Rachel M TaylorFaith Gibson
Dec 28, 2012·Clinical and Experimental Nephrology·Kanika KapoorN K Dubey
Dec 11, 2013·Journal of AAPOS : the Official Publication of the American Association for Pediatric Ophthalmology and Strabismus·Andrew ShinJoseph L Demer

❮ Previous
Next ❯

Citations

Feb 2, 2017·Pediatric Transplantation·S M AndersonK Gannon
Sep 30, 2016·Journal of Health Psychology·Sara Ahola KohutStephanie Luca
Feb 21, 2019·Pediatric Transplantation·Raphaël CavadiniOlivier Taïeb
Nov 24, 2019·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Sue V Beath, Jo Wray
Apr 22, 2017·World Journal of Gastroenterology : WJG·Norman JungeUlrich Baumann
Oct 27, 2016·Liver Transplantation : Official Publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society·Anna HamesMarianne Samyn
Nov 8, 2020·Best Practice & Research. Clinical Gastroenterology·Deirdre Kelly, Jo Wray

❮ Previous
Next ❯

Software Mentioned

IPA
NVivo
HEEADSSS

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.