Abstract
The indignities imposed by the words and actions of strangers in public recreation facilities can deter families with children experiencing disability from using these spaces. An interpretative phenomenological analysis case study was conducted to gain an understanding of how a young family with a child with autism experiences dignity during family leisure. Three generations (parents, grandmother, and great grandmother) participated in audio-recorded semistructured and conversational interviews. The interviews, thematically analyzed and interpreted using the conceptual framework of relational ethics, depicted the family's experiences of dignity: (a) living under a microscope; (b) "screw your microscope, we're going anyway"; (c) emerging stories of belonging; and (d) retreating, feeling overlooked, and lamenting the future. The family members experienced both dignity-affirming and dignity-removing interactions during community family leisure. Dignity was cyclically maintained, temporarily lost, and regained again as family members (re)formulated perceptions of self-respect, rejected stereotypes, and built relationships.
References
Jun 1, 1985·Journal of Autism and Developmental Disorders·S L HarrisC Palmer
May 1, 1994·Journal of Advanced Nursing·E D Mairis
Jun 1, 1993·Research in Nursing & Health·M Sandelowski
Jul 8, 1998·Nursing Ethics·L Shotton, D Seedhouse
Apr 29, 2000·International Journal of Nursing Studies·S L Tsai
Jul 4, 2002·Nursing Older People·Elizabeth Fenton, Theresa Mitchell
Aug 20, 2002·Scandinavian Journal of Primary Health Care·Bjørn Hofmann
Oct 19, 2004·Health Care Analysis : HCA : Journal of Health Philosophy and Policy·Lennart Nordenfelt
Oct 30, 2004·Aging & Mental Health·A B StevensW Haley
Dec 16, 2004·Nursing Ethics·Ann Gallagher
Jun 17, 2005·HEC Forum : an Interdisciplinary Journal on Hospitals' Ethical and Legal Issues·Wendy AustinMelissa S Johnson
Jun 29, 2005·British Journal of Haematology·R E Brown
Jan 9, 2008·Molecular Psychiatry·P R BakkerJ van Os
Feb 2, 2008·Journal of Autism and Developmental Disorders·Naomi Ornstein Davis, Alice S Carter
Jul 25, 2008·Qualitative Health Research·Roberta L WoodgateLoretta Secco
Feb 4, 2009·British Journal of Health Psychology·Sherrill Snelgrove, Christina Liossi
Jul 21, 2009·Journal for Specialists in Pediatric Nursing : JSPN·Supapak Phetrasuwan, Margaret Shandor Miles
Nov 17, 2009·Journal of Comparative Pathology·M J Day
Nov 28, 2009·Journal of Advanced Nursing·Hung-Lan Wu, Deborah L Volker
Dec 19, 2009·Qualitative Health Research·Vaughan Marshall, Bonita C Long
Sep 3, 2010·Nurse Education Today·Carol Haigh, Pip Hardy
Aug 21, 2012·Social Science & Medicine·Roberta Lynn WoodgateJacquie Ripat
Jan 28, 2014·Journal of Autism and Developmental Disorders·Jessica H SchroederJonathan A Weiss
Mar 25, 2015·Adapted Physical Activity Quarterly : APAQ·Keith R JohnstonJennifer Leo
Sep 15, 2017·Current Protocols in Chemical Biology·Heather M Robison, Ryan C Bailey