It's like a juggling act: rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes

Rheumatology
Caroline A FlureySarah Hewlett

Abstract

The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic analysis. Four themes suggest patients experience life with RA along a continuum from RA in the background to the foreground of their lives, underpinned by constant actions to maintain balance. Living with RA in the background shows patients experience continuous, daily symptoms, which they mediate through micromanagement (mediating the impact of RA on daily life), while learning to incorporate RA into their identity (redefining me). RA moving into the foreground shows patients experience fluctuating symptoms (unwelcome reminders) that may or may not lead to a flare (trying to make sense of fluctuation). Dealing with RA in the foreground shows how patients attempt to manage RA flares (trying to regain control) and decide to seek medical help only after feeling they are losing control. Patients employ a stepped approach to self-management (mediation ladder) as symptoms increase, with seeking medical help often seen as the last resort. Patients seek to find a balance between managing their fluctuating RA a...Continue Reading

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Citations

Sep 2, 2015·Nature Reviews. Rheumatology·Lilian H D van Tuyl, Maarten Boers
May 6, 2015·FEMS Microbiology Reviews·Marnie PotgieterEtheresia Pretorius
Jun 29, 2018·European Journal of Oral Sciences·Rana M N El QashtyFatma M M Ibrahim
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Jul 24, 2020·Journal of Clinical Nursing·Giulia ParentiSabrina Cipolletta
Jul 14, 2019·Rheumatology International·Kristine CarandangElizabeth A Pyatak
Jun 3, 2020·Journal of Medical Internet Research·Kathleen YinAnnie Y S Lau
Oct 20, 2020·Rheumatology International·Mrinalini Dey, Sizheng Steven Zhao
Jan 8, 2020·Arthritis Care & Research·Daniel J ZhouKaleb Michaud
Dec 1, 2021·Scandinavian Journal of Occupational Therapy·Maria BergströmMathilda Björk

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