It's not just the joints, it's the whole thing: qualitative analysis of patients' experience of flare in psoriatic arthritis

Rheumatology
Anna R MoverleyPhilip S Helliwell

Abstract

Flare is a commonly used term in arthritis, including PsA, but remains undefined. This study seeks to explore patients' experience of flare. Eighteen semi-structured interviews were undertaken with patients with PsA in an informal clinical setting. Patients were purposively sampled from specialist clinic lists to reflect the major elements of the psoriatic disease spectrum. Approximately one-third of patients reported themselves to be in a flare state at the time of the interview. Transcripts underwent thematic analysis according to the recommendations of Braun and Clarke (Using thematic analysis in psychology. Qual Res Psychol 2006;3:77-101). NVivo software was utilized, with initial coding reflecting the source data, such as pain, feeling miserable and feeling slowed down. Codes were then grouped into associated clusters. These clusters and the interrelationships were then summarized into emergent themes. The mean age of the patients was 44 years, and patients' average disease duration was 4.5 years. Nine main overarching themes pertaining to flare were identified: physical symptoms, social withdrawal, psychological symptoms, fatigue, loss of normal function, triggers, management of pre-flare, management of flare and timing. ...Continue Reading

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Citations

Apr 24, 2018·Expert Review of Clinical Immunology·Tania Gudu, Laure Gossec
Sep 4, 2017·Scandinavian Journal of Pain·Jenny SetchellPaul W Hodges
Aug 5, 2017·Arthritis Care & Research·Laura HowellsChristine Bundy
May 4, 2017·The Journal of Rheumatology·Philip S HelliwellPhilip J Mease
Aug 11, 2020·Rheumatology International·Joel Shi Quan TanYing Ying Leung
May 3, 2016·The Journal of Rheumatology·Anna R MoverleyPhilip S Helliwell
May 3, 2016·The Journal of Rheumatology·Ana-Maria OrbaiAlexis Ogdie
Sep 19, 2019·Rheumatology Advances in Practice·Emma DuresSarah Hewlett
Sep 24, 2020·Advances in Rheumatology·Elziane da Cruz Ribeiro E SouzaRoberto Ranza
Feb 17, 2021·The Journal of Rheumatology·Philip S HelliwellUNKNOWN PROMPT Study Group
Aug 14, 2021·Nature Reviews. Disease Primers·Oliver FitzGeraldPhilip J Mease
Nov 10, 2021·Scandinavian Journal of Occupational Therapy·Margaret L SøvikTina Taule

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