Lack of Awareness and Common Misconceptions About Palliative Care Among Adults: Insights from a National Survey.

Journal of General Internal Medicine
Signe Peterson FliegerSusan Koch-Weser

Abstract

Despite recent growth in palliative care programs palliative care remains underutilized. Studies suggest that patients and providers commonly associate palliative care with end of life, often leading to misconceptions and late referrals. To characterize self-reported palliative care knowledge and misconceptions about palliative care among US adults and demographic, health, and social role factors associated with knowledge and misconceptions. We conducted secondary data analysis of nationally representative, self-reported data from the 2018 Health Information National Trends Survey (HINTS) 5, Cycle 2. We examined associations between knowledge and misconceptions about palliative care together with demographics, health care access, health status, and social roles. 3504 US adults. 2594 included in the first analysis after omitting missing cases; 683 who reported knowing about palliative care were included in the second analysis. Palliative care knowledge was self-reported in response to: "How would you describe your level of knowledge about palliative care?" Level of misconceptions was based on a series of factual and attitudinal statements about palliative care. Among US adults, 28.8% report knowing about palliative care, but onl...Continue Reading

References

Mar 27, 2013·Journal of the National Comprehensive Cancer Network : JNCCN·Jamie H Von RoennAlain Serrie
Aug 20, 2015·The New England Journal of Medicine·Amy S Kelley, R Sean Morrison
Apr 2, 2016·Journal of Palliative Medicine·Hannah C Schreibeis-BaumKarl A Lorenz
Jul 7, 2017·Health Affairs·Diane E MeierR Sean Morrison
Aug 8, 2017·The American Journal of Hospice & Palliative Care·Thomas CarrollTimothy Quill
Nov 14, 2017·Annals of Internal Medicine·Katherine R CourtrightScott D Halpern
May 2, 2018·JAMA Internal Medicine·Peter MayR Sean Morrison

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Citations

Feb 5, 2021·The American Journal of Hospice & Palliative Care·Mohsen BazarganLucy W Kibe
Apr 29, 2021·The American Journal of Hospice & Palliative Care·Yun Cai, Nasreen Lalani
May 6, 2021·International Journal of Environmental Research and Public Health·Paula Hidalgo-AndradeAnna Belén Marcillo

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