Latino beliefs about biomedical research participation: a qualitative study on the U.S.-Mexico border

Journal of Empirical Research on Human Research Ethics : JERHRE
Rachel M CeballosBeti Thompson

Abstract

Latinos are under-represented in biomedical research conducted in the United States, impeding disease prevention and treatment efforts for this growing demographic group. We gathered perceptions of biomedical research and gauged willingness to participate through elicitation interviews and focus groups with Latinos living on the U.S.-Mexico border. Themes that emerged included a strong willingness to participate in biomedical studies and suggested that Latinos may be under-represented due to limited formal education and access to health information, not distrust. The conflation of research and clinical care was common and motivated participation. Outreach efforts and educational interventions to inform Latinos of participation opportunities and clarify harms and benefits associated with biomedical research participation will be essential to maintain trust within Latino communities.

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Citations

Apr 27, 2016·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Alexandra A GarcíaCzarina Lagon
Jul 28, 2017·The Hastings Center Report·Maya Sabatello, Paul S Appelbaum
Mar 10, 2016·Journal of Empirical Research on Human Research Ethics : JERHRE·Celia B FisherBrian Mustanski
Aug 19, 2020·Journal of Racial and Ethnic Health Disparities·Sadaf Arefi MilaniCatherine W Striley
Jul 29, 2020·Journal of Exposure Science & Environmental Epidemiology·Shohreh F FarzanCarrie V Breton
Dec 5, 2018·Journal of Clinical and Translational Science·Scott D RhodesBeth A Reboussin
Apr 13, 2021·Journal of Alzheimer's Disease : JAD·Lisa DamronHolly Shill
Apr 23, 2021·Nursing Research·Jennifer K ScanlonDavid Philippi

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