Lennox-Gastaut syndrome (LGS): development of conceptual models of health-related quality of life (HRQL) for caregivers and children

Seizure : the Journal of the British Epilepsy Association
Katy GallopJ Cramer

Abstract

LGS is a severe form of childhood epilepsy which is characterized by multiple seizures and cognitive impairment. Semi-structured interviews were conducted with 40 parents of children with LGS in the US, UK, and Italy. Parents were asked to report on their perceptions of the HRQL of their child and also to describe the impact on their own HRQL. Thematic analysis was conducted to develop themes relating to the impact on HRQL. The themes were organized into conceptual models of the impact of LGS on the HRQL of the parent and the child. The models demonstrate the complex relationships between the components of LGS and their impact on HRQL.

References

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Jul 14, 2009·Seizure : the Journal of the British Epilepsy Association·Katy GallopJoyce A Cramer

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Citations

Jun 16, 2010·Expert Review of Pharmacoeconomics & Outcomes Research·Cicely KerrDiane Wild
Oct 2, 2014·Epilepsy & Behavior : E&B·Eleni BomporiMeropi S Tzoufi
Jun 15, 2011·Epilepsia·Andreas BrunklausSameer M Zuberi
Aug 5, 2014·Seizure : the Journal of the British Epilepsy Association·Rose ThompsonChristine Linehan
Aug 13, 2011·Seizure : the Journal of the British Epilepsy Association·C KerrM Angalakuditi
May 2, 2013·Therapeutic Advances in Neurological Disorders·David T Hsieh, Elizabeth A Thiele
Jan 7, 2018·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Klajdi PukaKathy N Speechley
Jul 22, 2018·Journal of Neurology·Puneet JainUNKNOWN PEPSQOL Study Team
Dec 12, 2012·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Lionel Carmant, Sharon Whiting
Sep 25, 2020·Acta Neurologica Scandinavica·Boudewijn GunningDaniel Checketts
Jan 23, 2021·CNS Drugs·Adam Strzelczyk, Susanne Schubert-Bast
Sep 16, 2021·PharmacoEconomics Open·Siu Hing LoAndrew Lloyd

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