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Lethal privacy: Quantifying life years lost if the right to informational self-determination guides genetic screening for Lynch syndrome

Health Policy

Oct 27, 2019

Fabia GansenWolf H Rogowski

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Abstract

Genetic relatives of hereditary colorectal cancer patients with Lynch syndrome (LS) are at risk of cancer. Testing both colorectal cancer patients and relatives of mutation carriers for LS allows targeted prevention. However, this could mean disclosing sensitive health data to family me...read more

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Malignant Neoplasms
Health Insurance
Leigh Disease
Health Care
Prophylactic Treatment
Right
Structure of Levator Scapulae Muscle
Uptake
Genetic Screening (Procedure)
Analysis
6
3
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Lethal privacy: Quantifying life years lost if the right to informational self-determination guides genetic screening for Lynch syndrome

Health Policy

Oct 27, 2019

Fabia GansenWolf H Rogowski

PMID: 31492458

DOI: 10.1016/j.healthpol.2019.08.015

Abstract

Genetic relatives of hereditary colorectal cancer patients with Lynch syndrome (LS) are at risk of cancer. Testing both colorectal cancer patients and relatives of mutation carriers for LS allows targeted prevention. However, this could mean disclosing sensitive health data to family me...read more

Mentioned in this Paper

Malignant Neoplasms
Health Insurance
Leigh Disease
Health Care
Prophylactic Treatment
6
3

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