Leveraging state cancer registries to measure and improve the quality of cancer care: a potential strategy for California and beyond

Journal of the National Cancer Institute
Robert A HiattDeborah Schrag

Abstract

Despite recent increased attention to healthcare performance and the burden of disease from cancer, measures of quality of cancer care are not readily available. In 2013, the California HealthCare Foundation convened an expert workgroup to explore the potential for leveraging data in the California Cancer Registry (CCR), one of the world's largest population-based cancer registries, for measuring and improving the quality of cancer care. The workgroup assessed current registry operations, the value to be gained by linking CCR data with health insurance claims or encounter data and clinical data contained in health system electronic health records, and potential barriers to these linkages. The workgroup concluded that: 1) The CCR mandate should be expanded to include use of its data for quality of cancer care measurement and public reporting; and 2) a system should be developed to support linkage of registry data with both claims data and provider electronic health record data.

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Citations

Jul 15, 2015·Scandinavian Journal of Urology·Pär StattinMats Lambe
Sep 16, 2016·BMC Medical Informatics and Decision Making·Harry HochheiserRebecca S Jacobson
Aug 6, 2019·Cancer·Thomas C TuckerBin Huang
Sep 5, 2020·Annals of Surgical Oncology·Benjamin J ResioDaniel J Boffa
Dec 31, 2020·Journal of the National Cancer Institute·Megan HoopesNathalie Huguet
Feb 10, 2021·BMC Health Services Research·Khic-Houy PrangMargaret Kelaher
Mar 25, 2021·JCO Clinical Cancer Informatics·Paul WormeliMark Damesyn
Jun 30, 2021·Annals of Surgical Oncology·Candice A M SauderTheresa H M Keegan
Jul 25, 2021·International Journal of Environmental Research and Public Health·Andrea SpiniGiuseppe Roberto

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