Life disruption, life continuation: contrasting themes in the lives of African-American elders with advanced heart failure

Social Work in Health Care
Faith Pratt HoppRobert Zalenski

Abstract

This study addresses the need for more information about how urban African-American elders experience advanced heart failure. Participants included 35 African Americans aged 60 and over with advanced heart failure, identified through records from a community hospital in Detroit, Michigan. Four focus groups (n = 13) and 22 individual interviews were conducted. We used thematic analysis to examine qualitative focus groups and interviews. Themes identified included life disruption, which encompassed the sub-themes of living scared, making sense of heart failure, and limiting activities. Resuming life was a contrasting theme involving culturally relevant coping strategies, and included the sub-themes of resiliency, spirituality, and self-care that helped patients regain and maintain a sense of self amid serious illness. Participants faced numerous challenges and invoked a variety of strategies to cope with their illness, and their stories of struggles, hardship, and resilience can serve as a model for others struggling with advanced illness.

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Citations

Feb 4, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Kyoung Suk LeeDebra K Moser
Apr 17, 2014·Journal of Cardiac Failure·Patricia H StrachanAlexander M Clark
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May 17, 2017·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Oliver Rudolf HerberJulie Barroso
Jun 16, 2017·BMC Cardiovascular Disorders·Trisha GreenhalghSara Shaw

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Methods Mentioned

BETA
coronary bypass

Software Mentioned

Atlas
TI

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