"Life or death": Experiences of insulin insecurity among adults with type 1 diabetes in the United States.

SSM - Population Health
Samantha WillnerDanya Keene

Abstract

Insulin access for people with diabetes is a growing public health concern and particularly important for people with type 1 diabetes (T1D) who depend on insulin for survival. However, few studies have examined the psychosocial contexts in which people with T1D confront, navigate, and attempt to resolve insulin access barriers (IABs). We conducted a qualitative study to: 1) describe factors affecting insulin access among adults with T1D, 2) characterize behavioral and emotional responses to IABs, and 3) understand the overall impact of IABs on the lives of adults with T1D. We recruited a geographically and age diverse sample of U.S. adults with T1D (n = 21) from online diabetes support groups who self-identified as facing IABs. We conducted semi-structured phone interviews lasting 45-60 min between April and October 2017. We followed an inductive coding approach to identify concepts and themes related to participants' experiences with IABs. Participants conceptualized the experience of being without insulin as a "life or death" emergency, which significantly influenced their subsequent behavioral and emotional responses to compromised insulin access. Participants also described multiple IABs including unaffordable health care, ...Continue Reading

References

Sep 16, 2011·BMJ : British Medical Journal·Deborah Cohen
Mar 19, 2015·The New England Journal of Medicine·Jeremy A Greene, Kevin R Riggs
Feb 10, 2016·The Lancet. Diabetes & Endocrinology·David BeranRichard Laing
Apr 6, 2016·JAMA : the Journal of the American Medical Association·Xinyang HuaPhilip Clarke
Mar 24, 2018·Diabetes Care·UNKNOWN American Diabetes Association
Mar 30, 2018·MMWR. Morbidity and Mortality Weekly Report·Kai McKeever BullardGiuseppina Imperatore
May 10, 2018·Diabetes Care·William T CefaluUNKNOWN Insulin Access and Affordability Working Group
Dec 7, 2018·JAMA Internal Medicine·Darby HerkertKasia J Lipska

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Citations

Jan 27, 2021·JMIR Diabetes·Su GolderGraciela Gonzalez Hernandez
Apr 23, 2021·Pediatric Diabetes·Julia E BlanchetteJamie R Wood
Sep 25, 2021·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Maddalena De MariaDavide Ausili

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