Linguistic validation of cystic fibrosis quality of life questionnaires

Jornal de pediatria
Tatiana RozovJosé R Jardim

Abstract

The purpose of this study was to validate the Portuguese translations of four cystic fibrosis quality of life questionnaires (CFQ). The first three were developed for patients with cystic fibrosis aged from 6 to 11 years, from 12 to 13 years and 14 years or more, while the fourth was developed for the parents of patients aged 6 to 13 years. The four CFQ translations contained from 35 to 50 questions covering nine domains and were validated as follows: translation from English to Portuguese, pilot application, back translation and then approval by the author of the English versions. The four translations were applied to 90 stable patients (30 from each age group) and the parents of patients aged 6-13 years (n = 60), on two occasions with a 13 to 17 day interval. Intraclass Correlation Coefficients (ICC) were used to measure reproducibility. This study was approved by the Commission for Ethics in Research at the institution. Reproducibility was good (ICC = 0.62 to 0.99) for the four translations in all domains, with the exceptions of the Digestion domain for the 6 to 11 and 12 to 13 years age groups with ICC = 0.59 and 0.47, respectively and the Social Role domain for the 14 and over age group (ICC = -0.19 ). The translation and ...Continue Reading

Citations

Mar 18, 2016·Jornal brasileiro de pneumologia : publicaça̋o oficial da Sociedade Brasileira de Pneumologia e Tisilogia·Taiane Dos Santos FeitenBruna Ziegler
Jan 30, 2014·Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo·Tatiana RozovUNKNOWN Brazilian Cystic Fibrosis Multicenter Study Group
May 4, 2011·Jornal brasileiro de pneumologia : publicaça̋o oficial da Sociedade Brasileira de Pneumologia e Tisilogia·Milena Antonelli CohenAndré Moreno Morcillo
Jun 24, 2009·Jornal brasileiro de pneumologia : publicaça̋o oficial da Sociedade Brasileira de Pneumologia e Tisilogia·Célia Regina Moutinho de Miranda ChavesAna Lúcia Pereira da Cunha
Jun 25, 2020·Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo·Nelbe Nesi SantanaSaint Clair Dos Santos Gomes Junior
Apr 1, 2020·The Cochrane Database of Systematic Reviews·Victor Hb OliveiraPatricia Angelica Ms Nogueira
Jul 7, 2007·The Journal of Asthma : Official Journal of the Association for the Care of Asthma·Marcos RibeiroMario Terra-Filho

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