Lived experience researchers partnering with consumers and carers to improve mental health research: Reflections from an Australian initiative

International Journal of Mental Health Nursing
Michelle BanfieldKathleen Griffiths

Abstract

Consumer and carer involvement in mental health research is a growing and developing field. Whilst there has been policy and in-principle support for such involvement from governments around the world, lived experience researchers conducting academic research in partnership with other consumers and carers remains uncommon. The Australian Capital Territory Consumer and Carer Mental Health Research Unit is based at The Australian National University and employs academic researchers with lived experience to undertake research directly relevant to the needs of mental health consumers and carers with the aim of influencing policy and practice. In this study, we share our experience of developing and conducting research within ACACIA to provide a model for meaningfully engaging mental health consumers and carers throughout the research process.

References

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Jun 13, 2002·The Australian and New Zealand Journal of Psychiatry·Kathleen M GriffithsKeith B G Dear
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Jan 10, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Michelle A BanfieldHelen M Christensen
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Citations

Oct 4, 2018·International Journal of Mental Health Nursing·Stephanie StewartBrenda Happell
Jul 26, 2019·Journal of Psychiatric and Mental Health Nursing·Brett ScholzBrenda Happell
Apr 30, 2020·Perspectives in Psychiatric Care·Brenda HappellChris Platania-Phung
Aug 12, 2020·Australian Health Review : a Publication of the Australian Hospital Association·Ania AnderstVicki Taylor
Aug 29, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Alyssa R MorseMichelle Banfield
Dec 11, 2019·International Journal of Mental Health Nursing·Raffaella PocobelloCosimo Venerito
Dec 14, 2018·Health Research Policy and Systems·Michelle A BanfieldKathleen M Griffiths
Apr 3, 2019·International Journal of Mental Health Nursing·Carina SangillLene Lauge Berring
Sep 23, 2020·BMC Psychiatry·Anne HoneyBarbara Tooth
Nov 22, 2020·International Journal of Mental Health Nursing·Sophie IsobelDeborah Howe
Dec 19, 2020·Australasian Journal on Ageing·Kathryn Browne-YungMonica Cations
Jun 18, 2021·International Journal of Mental Health Nursing·Helena Roennfeldt, Louise Byrne
Jun 22, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Tamara L McCarronMaria Santana
Dec 11, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jane DesboroughChristine Phillips

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